I recently have been diagnosed with Chiari 1 Malformation (CM). All the symptoms you describe is included in CM. A lot of neuros are not educated in this, neither are radiologists it often overlooked by one or the other or both. It can be diagnosed via an brain MRI - you can even diagnose it yourself ... it is very easy.
I ran into this info on CM before I was diagnosed and I thought if I had that they would definitely see it in the mri so I ignored it thinking it was unlikely ... I was wrong. So please do not overlook this info and the possibility of having it until you look at your mri (based on video below will help you distinguish if you have it) or post it to the fb group below for review.
You can view the video here about how to see if you have it: https://www.youtube.com/watch?v=I0f9e3pU6to
If you are unsure about doing it yourself you can join a Facebook chiari group I'm in and post the brain MRI and others are more than happy to help you with saying yeah or nah. The group is:
**URL removed by Moderator in compliance with MSWorld Guidelines. This may be put in your Profile for all registered, logged-in members to see. Go to your Username on black bar running across top of page > My Settings > Edit Profile**
Here is a video on some of the symptoms: https://www.youtube.com/watch?v=YyF3HVgHpCs Also, with CM you can have a Positive Romberg sign and you can have tremors as stated in 1st video above.
My neuros keep going over all the same conditions such as listed in the above (main) post but nothing until they confirmed CM. Seriously check it out. When I looked back at old MRIs dating back to over 15 years ago I had CM at that time but was never diagnosed.
To bad we can't upload pics or I'd upload a photo to show you how to rule in or out CM. The group above is great to diagnose it - it is very easy with MRI. Seriously do not rule this out until you view your MRI.
I ran into this info on CM before I was diagnosed and I thought if I had that they would definitely see it in the mri so I ignored it thinking it was unlikely ... I was wrong. So please do not overlook this info and the possibility of having it until you look at your mri (based on video below will help you distinguish if you have it) or post it to the fb group below for review.
You can view the video here about how to see if you have it: https://www.youtube.com/watch?v=I0f9e3pU6to
If you are unsure about doing it yourself you can join a Facebook chiari group I'm in and post the brain MRI and others are more than happy to help you with saying yeah or nah. The group is:
**URL removed by Moderator in compliance with MSWorld Guidelines. This may be put in your Profile for all registered, logged-in members to see. Go to your Username on black bar running across top of page > My Settings > Edit Profile**
Here is a video on some of the symptoms: https://www.youtube.com/watch?v=YyF3HVgHpCs Also, with CM you can have a Positive Romberg sign and you can have tremors as stated in 1st video above.
My neuros keep going over all the same conditions such as listed in the above (main) post but nothing until they confirmed CM. Seriously check it out. When I looked back at old MRIs dating back to over 15 years ago I had CM at that time but was never diagnosed.
To bad we can't upload pics or I'd upload a photo to show you how to rule in or out CM. The group above is great to diagnose it - it is very easy with MRI. Seriously do not rule this out until you view your MRI.
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