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  • rsinger
    replied
    MRI frequency
    Since you have been off of any DMT's Mamabug have you had any problems?

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  • Mamabug
    replied
    I have generally had MRI's once every 5 years. More frequently (once or twice a year), in the past year or two, since I went off my Copaxone and am no longer on any DMD's.

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  • pennstater
    replied
    Sometimes we do need to travel for a good neuro. Sounds like going back to your prior neuro was a good move. They seem to be thorough with the testing and also treat the patient based in symptoms and just treat based on the MRI.

    For what it is worth, I did change DMTs based on symptom progression (new and worsening of old) even though my MRI showed no change. It did help me. So if you do experience progression, it would be worth the discussion with your neuro. I wish there was a straight answer and easy treatment map for each of us.

    Hope you do get relief from your symptoms. Take care and thanks for the update.

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  • loopey
    replied
    Great to hear! Best wishes going forward.

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  • rsinger
    replied
    Pennstater,
    Thanks for your response. It was time for my annual but I was seeing a different neurologist closer to home.
    I was bothered by his approach. Very quick to recommend a DMT change without any lab work or new scans.
    I did return to my neurologist. New scans and lots of different lab work was ordered. Nothing seems to be changing
    in the past 5 years. We are treating my symptoms with other medications but not a change in DMT.
    Hopefully I will have some resolution within the next few weeks.
    Thank you again for responding.

    Leave a comment:


  • pennstater
    replied
    If it is time for your annual MRI, I would push for it. If it is not, I would ask the neuro if a new MRI would be beneficial as a baseline to serve as a partial measure of how effective the new DMT is. The other measure would be your symptoms/progression.

    I get them annually as well, all without contrast. I have switched meds twice, but both times it was after my annual MRI.

    Hope you feel better. Good luck with any decision.

    Leave a comment:


  • oceanpride
    replied
    I personally wouldn’t be concerned about having another MRI done as I believe that it’s only an after the fact thing. Changing medications seems like your best and maybe only chance. Hopefully it puts it into remission. I’ve had three or four in 14 years and they’ve all just made me feel worse about it all. I looked at one once and then had to look away quickly and would never look again. It is what it is. I think your doctor probably has enough to by.

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  • rsinger
    started a topic MRI frequency

    MRI frequency

    I usually have imaging done annually of the brain, cervical and thoracic regions. New doctor wants to change medications due to new symptoms but doesn't think a new MRI is necessary. Last imaging was about 1 year ago. Anyone have any ideas about this?
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