I was diagnosed just a month ago so when I first joined this site I had no idea what limbo meant. I was so quickly diagnosed that I had to research it myself to see why it was such an easy diagnosis.
Although I hate that I have ms and am still coping with my world being turned upside down, I see all the stories on here about people having symptoms for months or even years without being diagnosed. I hate having ms but I would hate not knowing even more.
I saw a neuro/ms specialist yesterday and it was absolutely amazing to have all my questions answered and to be set up on a treatment plan. I thought the worst thing was having ms but it turns out that for me, the unknown is far more scary. 2 days ago I was completely lost and feeling sorry for myself. I have a whole new outlook today.
It's amazing how you regain power with knowledge. I had educated myself pretty well in the past month, but for a dr to explain how everything applies to me and to explain everything in such detail was exactly the reassurance I needed.
I was scared that I had progressive ms because I had back to back flare ups in a month and my symptoms never completely subsided. It turns out that I just have "aggressive ms" but it is still just rrms. Therefore, they are going to give me a more aggressive treatment.
I am so excited to know what's going on for the first time since this bomb was first dropped on me. I am actually more optimistic about my future!
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
Although I hate that I have ms and am still coping with my world being turned upside down, I see all the stories on here about people having symptoms for months or even years without being diagnosed. I hate having ms but I would hate not knowing even more.
I saw a neuro/ms specialist yesterday and it was absolutely amazing to have all my questions answered and to be set up on a treatment plan. I thought the worst thing was having ms but it turns out that for me, the unknown is far more scary. 2 days ago I was completely lost and feeling sorry for myself. I have a whole new outlook today.
It's amazing how you regain power with knowledge. I had educated myself pretty well in the past month, but for a dr to explain how everything applies to me and to explain everything in such detail was exactly the reassurance I needed.
I was scared that I had progressive ms because I had back to back flare ups in a month and my symptoms never completely subsided. It turns out that I just have "aggressive ms" but it is still just rrms. Therefore, they are going to give me a more aggressive treatment.
I am so excited to know what's going on for the first time since this bomb was first dropped on me. I am actually more optimistic about my future!
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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