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MENOPAUSE MS - HRT

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  • couponlady
    replied
    allodynia

    Originally posted by football-mom View Post
    It sounds like you have developed a new MS symptom called Allodynia. Mine is pretty well-controlled with gabapentin.
    I looked up the definition. sounds exactly what I have going on with my skin.
    definition for those who don't know:
    Allodynia occurs when a person feels pain in response to a stimulus that is normally not painful, such as a person's touch or even clothing or bed linens touching skin. ... MS Hug: Like many MS symptoms, the MS hug feels different for different people.Jun 13, 2017m

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  • football-mom
    replied
    Originally posted by couponlady View Post
    I will be 52 in August. I had a hysterectomy in 2006. 1 ovary left in. I have had menopausal symptoms really bad this year. The one symptom i am having difficulty with is an internal burning skin sensation, and a skin issue that i think is neurological. Dont like my skin touched. Feels like every hair folicle is stabbing me. The burning is bad in my vagina and exterior skin. To the point that i cant have intercourse. My GYN said i have no problems there. She suggested estrogen cream which i thought was helping, but it was short term.
    It has created a strain in my marriage.
    Has anyone else had this??
    It sounds like you have developed a new MS symptom called Allodynia. Mine is pretty well-controlled with gabapentin.

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  • couponlady
    replied
    Menopause or MS.....

    I will be 52 in August. I had a hysterectomy in 2006. 1 ovary left in. I have had menopausal symptoms really bad this year. The one symptom i am having difficulty with is an internal burning skin sensation, and a skin issue that i think is neurological. Dont like my skin touched. Feels like every hair folicle is stabbing me. The burning is bad in my vagina and exterior skin. To the point that i cant have intercourse. My GYN said i have no problems there. She suggested estrogen cream which i thought was helping, but it was short term.
    It has created a strain in my marriage.
    Has anyone else had this??

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  • Carolinemf
    replied
    Can You give more info? Age ? etc?

    Members would be more able to identify and or give opinions if we knew more about your circumstances.
    All the best.

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  • tjcann00
    replied
    I'm also on Tysabri which I seem to do fine on. I have been wondering lately about menopause and my moods. Could it be hormonal? I am way more easily angered and stressed. Depression. Any ideas or suggestions?
    Thanks
    T.

    Leave a comment:


  • Carolinemf
    replied
    Have been using oestradiol patches since Oct.
    Started on 25mcg but did ok so bumped up to 50mcg after 1 month.

    I haven't noticed any significant benefits so far other than improved skin and less dryness.

    Had my neuro apt with mri in Dec and to docs surprise one quite large lesion has almost disappeared. has been on mri's every 6 months for years.

    I am not sure of significance of this because like i said i haven't noticed much change within myself.

    I also began taking some supplements and did the fast mimicking diet for two months and then moved on to a Mediterranean diet.

    The change in diet has helped with quality of life and coping in general so I do recommend it to any interested and I didn't find it hard to do.

    I have been more moody the last few weeks but can't conclusively blame the HRT. Could be just xmas stress. Gyn has suggested taking a break in Jan/Feb from HRT to determine if it is contributing to mood.

    Still doing Tysabri

    Hope this find you well.

    Leave a comment:


  • KatW
    replied
    All of the above!

    My menopause went into full effect last year. I had all the symptoms that I read here and more. My sleep was horrible and it wasn't just the hot flashes. My dr out me on the pill. It worked but it was too strong. I now take Black cohesh. It has helped. I need to go back for something prediction.

    One thing I think about is the protective properties that estrogen is supposed to have. I want to make sure I have all the advantages I can get! Plus, my gyn highly recommended hrt.

    Leave a comment:


  • Carolinemf
    replied
    Hi Vampira,
    It's funny that you say that.
    I've been researching everything and anything of late and that was one that i found that surprised me- I though it would cause more fog! So thanks for the suggestion.
    Have commenced a fast mimicking diet and taking supplements- in general i feel better physically but the only time the memory/ cog funct improves is if i get cranky.http://www.msworld.org/forum/images/icons/icon7.png More focus I guess.

    See Gyno 30/8. So will just potter along till then.
    All the best.

    Leave a comment:


  • vampira
    replied
    menopause

    I realize this may sound insane to you, but have you tried marijuana? It comes so many ways now that you don't even have to smoke it. It really does help pain & stiffness. Just a little possible help.

    Good luck & God bless

    Leave a comment:


  • vampira
    replied
    menopause

    Originally posted by Carolinemf View Post
    wanted to refresh this thread too.
    Having all issues mentioned here as well as bad cognitive and memory problems.
    I had a hysterectomy 7 years ago so I didn't know about onset of menopause till i requested blood tests 2 weeks ago. Result- smack in the middle of menopause.

    Not sure what to blame on ms or menopause but everything has deteriorated in a relatively short time.
    Really having trouble coping and tryin to work through options.
    Have been referred to gyno to discuss HRT.
    Have also been recommended that i start Lemtrada to slow up brain atrophy and other symptoms.
    I was hoping to get replies from ladies that might be abl to share their experiences in regard to being on a ms treatment as well as HRT and some thoughts about whethr doing this was helpful or not.
    All the best.
    not sure if it's menopause. Going to Gyno. tomorrow. Hot flashes really suck with MS. I get youIt definitely feels like I'm falling apart even more.

    Leave a comment:


  • Carolinemf
    replied
    wanted to refresh this thread too.
    Having all issues mentioned here as well as bad cognitive and memory problems.
    I had a hysterectomy 7 years ago so I didn't know about onset of menopause till i requested blood tests 2 weeks ago. Result- smack in the middle of menopause.

    Not sure what to blame on ms or menopause but everything has deteriorated in a relatively short time.
    Really having trouble coping and tryin to work through options.
    Have been referred to gyno to discuss HRT.
    Have also been recommended that i start Lemtrada to slow up brain atrophy and other symptoms.
    I was hoping to get replies from ladies that might be abl to share their experiences in regard to being on a ms treatment as well as HRT and some thoughts about whethr doing this was helpful or not.
    All the best.

    Leave a comment:


  • futurmil2b
    replied
    Wanted to bump up this thread to see if anyone other ladies can relate to menopause - HRT.

    On top of everything else I am going through.. Have sinus issues.. starting take allergy shots which I was told by nurse, will make me feel worst before I felt better.. nothing can be farther from the truth... muscles feel more tighter.. head pressure, face pressure.. everything feels tight.

    Ms Jay

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  • futurmil2b
    replied
    Originally posted by DancingOnTheEdge13 View Post
    I am 51. Had to take disability retirement in Nov. 11. I was crushed because I loved what I did. (I worked with special needs high school students) In Nov, I missed my period. Ok I thought, no problem.

    Dec. 2011 dh who is NEVER sick dx'd with stage iv lung cancer, not expected to leave the hospital. But dr. did send him home Christmas Eve saying it would be his last. No period in Dec.

    Jan dh started moving around and actually surprising his dr. Still I felt like I had a new born I had to watch all the time. Jan...no period. Same for Feb and March.

    I thought "Rock on!!! Oh yeah, I am in menopause, let's get this over with!"

    April, we had to move, which was a blessing to me as I had been wanting out of our trailor for years. It was hard to clean, small so I could not get around and I lived in my bedroom. Now we are in a duplex, spacious, w/ no steps. And, my period returned with a vengence. In fact had another at the end of April.

    I have the tightness. I look like Herman Munster when I am able to walk. My left arm is tight and I have a lot of shoulder pain. Tightness and stiffness are there every day now. I never thought about menopause being a possible factor. HRT??? I don't know because I take enough meds now. But I guess I do need to discuss this with my dr.

    I have put everything off to the fact that DH is terminal. Dr. says 6months to a yr maybe...maybe 2 yrs. My youngest is in her jr year of high school. The thought that in a year and a half I could be alone is never far from my mind. I am so proud of our youngest. She is our bright light. I just have been an emotional basket case

    I will be interested in any feedback you get. I wish I had answers for you. I do take Zanaflex....I don't see it helping. I quit taking neurontin when I retired and lost my insurance, but now have insurance and neuro rx'd Mirapex. It helps with my RLS but not stiffness and my Herman Munster imitation.

    I am so sorry this is long with no answers and yet more questions. I hope someone knows what direction to point you...I may follow if you don't mind
    H, I would like to touch basis with you a bit more. I have started the hrt.. it has helped me emotionally but not physically.. I still have tight, tensed up muscles...aaggghhh.

    Like you, still walking like Herman the Munster.. LOL. ITS AWFUL Mornings are the WORST. I was trying not to take ativan as much anymore but looks like I am going to have to until this tightness loosens up.

    I hope you get this message if so, can you email me? My email address is in my profile. It helps so much to chat with others that understands and can relate.

    Hope your hubby is hanging in there.. So sorry to hear about his illness.

    Jay

    Leave a comment:


  • futurmil2b
    replied
    Thanks ladies for your response...very much appreciated

    I have decided to give hrt a try. I started this pass Sunday.. Today will be day (6). I think I can tell a VERY SMALL difference.. but with all the tightness and tension its hard to tell if its helping.. but I think it is.

    I know it will take more time for me to really feel a difference and I am going to try very hard to stick with it for a bit.

    MyGirlsMom.. how long before you started feeling better? I work a full time job and it is getting very rough. Sitting at a desk all day is taking its toll and long story short, my manager is giving me a hard time about my breaks which is added tension and tightness. Are you on any DMD type meds??

    Morning tightness/stiffness is the worst - neck/shoulders/abdomen/head/back of neck... Some days I feel like just throwing in the towel.. but trying hard to chug along.

    Jay

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  • futurmil2b
    replied
    THANK YOU....

    Originally posted by MyGirlsMom View Post
    Hi future!

    Yes, menopause is rough...and can aggregate the MS too. I don't have an answer for you, but can share my story. Before my MS dx in 2009, I was on the pill....my doctors said that I could go through the worst of perimenopause sxs by managing the hormone fluctuations by being on the pill. However, two years ago at age 48, I was emotionally all over the place. I stopped the pill and immediately felt better...I think the dose was wrong for me and I was getting too much hormones.

    But, then I started waking up at night around 1 or 2 in the morning and finally falling back asleep at 4 or 5 am. I'd have to get up for work and get the kids to school before 8....it was killing me! I would also wake up feeling really hot (but not sweating, just very very warm) so I would take the hot water bottle that I used for my cold feet at bedtime and fill it with cold water in the middle of the night because the heat made my MS sxs in my legs flair. (Basically burning pain and painful pins and needles on the bottom of my feet and backs of legs.)

    I decided it was all just too much and went on HRT. It was amazing how much better I felt and how much my sleep improved! I am now on the lowest Vivelle Dot dose and take progesterone every three months.

    It has truly saved me! I have had only two, very small periods in the summer of 2010...and that is about it....I guess I am in full menopause at age 50. I know won't be on HRT forever, just a few years and then go off and see how it goes.

    Hope my experience helps you decide what to do.
    Your post really helped me. With all this tightness and tension... sometimes I ask myself what's the use in trying anything. Its like I feel on edge A LOT...not sure when the last time my body has been in a calm/relaxed state.


    Jay

    Leave a comment:

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