Facebook Group

[Marco]

As MS World approaches its closure, a Facebook group has been created to continue our conversation.

The name of the group is "Multiple Sclerosis Collective," and there is a link in my profile.

We currently have 21 former and current MS World members. While Facebook can never replace MS World, the group is a place for old and new MS friends to connect.

I hope you will join us.

Blessings to one and all.

[pennstater]

Thanks again Marco for starting the FB page!

[oceanpride]

Yes thank you Marco
It probably will be the end of the line for me as I’ve never had Facebook before and it only ever sounded like trouble but I know every body has it.
it took a lot of bravery on my part just to post on here. You guys all made me feel comfortable
Thanks to all !!!

[KoKo]

Yes thank you Marco
It probably will be the end of the line for me as I’ve never had Facebook before and it only ever sounded like trouble but I know every body has it.
it took a lot of bravery on my part just to post on here. You guys all made me feel comfortable
Thanks to all !!!

Hey oceanpride!

I never joined Facebook either.

I don't have the energy to acknowledge or comment on every friend or family member post, photo, video, etc.

Don't want to offend or hurt their feelings by not responding in a timely manner.

It takes me a long time to type anything.

I wonder if I join Marco's group, will I have to sign up for my own FB page as well?

[Marco]

I wonder if I join Marco's group, will I have to sign up for my own FB page as well?

All Facebook accounts have their own page, but there's no requirement to populate it.

Similar to MSWORLD.ORG, you can create an account—even an alias—and participate as much as you like. There are accounts that remain blank years after they are created.

You also don't have to befriend anyone, or feel obligated to respond to other's posts.

It's really up to you.

[KoKo]

All Facebook accounts have their own page, but there's no requirement to populate it.

Similar to MSWORLD.ORG, you can create an account—even an alias—and participate as much as you like. There are accounts that remain blank years after they are created.

You also don't have to befriend anyone, or feel obligated to respond to other's posts.

It's really up to you.

Hi Marco!

Thank you for helping me to understand FB a lot better!

[Kimba22]

I’ve never had Facebook before and it only ever sounded like trouble but I know every body has it.
it took a lot of bravery on my part just to post on here. You guys all made me feel comfortable

I don't have the energy to acknowledge or comment on every friend or family member post, photo, video, etc.

Don't want to offend or hurt their feelings by not responding in a timely manner.

It takes me a long time to type anything.

Same here.

I wasn't interested in joining Facebook, until one of my best friends finally convinced me to. You don't need to post anything, or even add a picture to your profile.

I'm mostly just friends with family and a few good friends. I'm glad I joined, because it's a way to still feel connected with them, especially since I don't get to see many of them anymore. I also have family that live in other states, so we stay in touch thru FB. You can also add privacy settings to your account, so it's not visible to just anyone.

Like Marco said, you can use an alias for your name, and it's up to you how much you want use it. It's easy to use, even my 98 old MIL recently joined. I hope you'll both join us there! (There is a comment in Marco's FB group asking what our username is here, so we know who are.)

[Seasha]

I'm excited to join in, but will have to wait until our son and family from Argentina move to their rental and the chaos lessens. Two active grandkids seem like 4 or more. lol

My grown children have been wanting me to join for years now!

[Mamabug]

Thanks, Marco, for creating the Facebook page. I'm definitely a Facebook user. In fact, I suspect that I'll be more likely to go there than I was here. Many years ago, when MSWorld, was much more active, I was here a lot. But, over the years, even being a moderator, it sometimes wasn't the first place I'd migrate to when I had my phone out.

I submitted a request to join Multiple Sclerosis Collective. I'll look forward to seeing some of you there.

Speaking of aliases -- Faith was my alias here. It's my middle name. You'll see me as Sheralyn at Multiple Sclerosis Collective after I am able to make a post there.

- Faith (Sheralyn)