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~ Faith
MSWorld Volunteer -- Moderator since JUN2012
(now a Mimibug)
Symptoms began in JAN02
- Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
- In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08.
- Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
- Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.
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Originally posted by palmtree View PostIf anyone is thinking of protecting assets by hiring a lawyer I recommend having it in place well before you are ready to enter a CCMC.
Originally posted by palmtree View PostIf anyone might need to use Medicaid it takes major acrobatics to get things safe. Everything must be done five years before entering a facility.
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Wanted to bring this thread up to date for those who responded to it last year and newbies who may be interested.
It isn't a lock yet, but I found a place that meets all or at least many of my requirements. You can only see so far ahead in life and to extrapolate isn't recommended IMHO. So research is over and I have begun to act.
Timing, patience, a handful of other virtues (think faith) have been at the forefront these past months. A lot remains before I can move, but that said, I expect mid autumn will find me in new digs.
Any questions are welcome... they might come in handy as I dot the "I's" and cross the "t's." The preceding responses to this thread have been addressed, at least as best as I could currently.
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I have a couple. Did you have to pay an entrance fee? Does the facility control the money? if yes, suppose they go bankrupt iWas it possible to research if the monthly fees in past years remained consistent without sudden spikes? I don’t mean to be offensive but could you ballpark the entrance fees and the monthly’s and finally what state do you reside? Thank you for all the help you are comfortable sharing.
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Originally posted by pennstater View PostLots of luck Jer. Hope it is a great transition for you.
It's going to be a learning experience for sure but that's a good thing.
Also a side note, I did look into (asked is all), on staff, retention rates, nurses or aides for assisted living section (if or when this transition becomes needed). The answer was similar but reflected a lot of what Covid-19 did around the world. Previous to 2020 their retention rates were average. They felt understaffed in 2020. Honest IMO.
I did consult with an attorney over my LW&T etc, needed updating (my executor passed last year). And I addressed your question of leaving. One can leave at any time. Understand that the buy-in refund declines over time, so after a pre determined amount of years... zero refund.
What happens if you are no longer able to manage your finances? Part of the paperwork needed for entrance is a PoA who in my case can handle medical and financial requirements.
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Originally posted by robert152 View PostI have a couple. Did you have to pay an entrance fee?
Originally posted by robert152 View PostDoes the facility control the money? if yes, suppose they go bankrupt iWas it possible to research if the monthly fees in past years remained consistent without sudden spikes?
Originally posted by robert152 View PostI don’t mean to be offensive but could you ballpark the entrance fees and the monthly’s and finally what state do you reside? Thank you for all the help you are comfortable sharing.
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JER ( if I may call you JER) thank you for the info. My wife is recovering from a very nasty fall which I may post about and we will have to sell our two story house and move but where??? We are considering independent living if My wife recovers as they are predicting so I am just starting to check things out. Again, thank you and best of luck.
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Much appreciate the update!
My plan is also to eventually go to a place like Pennstater described and definitely with a skilled/dementia unit. There are a couple of nice ones around here. It will likely be expensive but that is what I have worked for and fortunately there are no concerns about preserving an estate. I'd like to spend it all and if not the remaining will go to an animal charity.He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
Anonymous
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SEGUE:
A note to say I decided on the Life community (CCRC) mentioned earlier (post #18). Listing my home at the time it presented best (Summer / Fall) and putting up with strangers even during limited hours, isn't good for the old MS.
Now over, apparently sold in a few days but had to honor showings scheduled for a few additional days. Closing to come in 3 weeks, need not be present. Yes! Not over till then, but confidence is high. Funny how that expression use to be more common to me, Hmmmm.
During all this my soon-to-be apartment was under all the havoc Covid-19 spread across the manufacturing industry. Think rugs, cabinets yada-yada....
Currently get to focus on cancelling services, scheduling services and of course, cash flow.
And a move in date a few weeks before Thanksgiving ! ! ! .... Very happy but still much to do with the MS gorilla chuckling at my antics.
Thanking God and a small band of very good friends that this much has been accomplished since the start of this thread.
Will end this thread from the apartment, once I have internet service set up!
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Congratulations! Hang in there and I will look forward to updates from your new apartment.He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
Anonymous
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