Something as simple as renewing my AAA card, shocked me as to how "far I've progressed" over these last 18 years! When I became a AAA card member, I was in my thirties, just got promoted at work and started grad school at night.
Eighteen years later, I'm on SSDI. I've "de-escalated" to now having to shower 'the day before' I have an "outing" (doctor appointment, grocery shopping, etc.). Bascially living the life of a "hermit" as my fatigue keeps me a prisoner.
"You look so good" (ouch) "You're lazy" (ouch) Why don't folks get it 25 years after my MS dx. And, why don't I get it either? Denial, denial, denial. . .as reality smacks me in the face!
Time to start plotting a smarter course, I suppose? How can I break my MS fatigue stranglehold?
Eighteen years later, I'm on SSDI. I've "de-escalated" to now having to shower 'the day before' I have an "outing" (doctor appointment, grocery shopping, etc.). Bascially living the life of a "hermit" as my fatigue keeps me a prisoner.
"You look so good" (ouch) "You're lazy" (ouch) Why don't folks get it 25 years after my MS dx. And, why don't I get it either? Denial, denial, denial. . .as reality smacks me in the face!
Time to start plotting a smarter course, I suppose? How can I break my MS fatigue stranglehold?
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