**PLEASE forgive me if I am somehow posting in an inappropriate place. I am totally new to this board...thanks!**
If anyone can share insight about the process from here, I’d appreciate it!
I am a 51-year-old woman whose brain MRI with contrast shows “scattered nonspecific hyper intense foci”...and I think I’m still quite young for that.
For over a decade, we’ve been trying to chase down a diagnosis for my days-to-months-long “spells” —ones that include dizziness, extreme fatigue, blood pressure swings, eye pain/blurry sight, headaches, weakness, brain fog, muscle twitches, numbness/tingling, gastrointestinal stuff. They often come on when I get an infection, deal with major stress, and/or just physically overdo it.
I’d recently become passive-aggressive re doctors and just stopped chasing an answer. That is, until my latest “spell”—now lasting over a month with symptoms keeping me homebound—sent us to the ER. The doc there recommended an MRI and suggested something like MS.
That was two weeks ago.
Out of all the gastroenterologists, endocrinologists, rheumatologists, hematologists, allergists, internists (and yes...even a neurologist!) I’ve seen, not one ever suggested brain imaging!. The neurologist even suggested “conversion disorder”...i.e., I was TELLING my body it was sick. Ugh.
So...I go to my primary doc to request the MRI at the ER guy’s recommendation. I get it done, and the results are as mentioned earlier. I have an initial consult with a neurologist in two weeks, being very fortunate to get in so fast because I can self-pay.
I’ve waited several days to look at any info about MS because it was much easier to speculate and now harder to deal with facts.
That’s my story, really. I know many of you have struggled longer and harder for a diagnosis, and my heart goes out to you,
I guess I’m posting here because I wonder what happens next. My husband and I are pretty darned sure it’s MS at this point. I know it takes a long time and usually several tests to confirm it....so do you think it will it be much longer before I can receive treatment? AND can get on with LIFE...?
My family visits NYC at Thanksgiving every year, and I’m used to traipsing all over the city (in the past years, to my detriment). This is a “first-world” problem indeed, but I’m trying to grasp what the trip will look like for me this year and if I should do some extra planning.
I guess it’s kinda hard to anticipate next month when you don’t even know how much worse you’ll feel tomorrow. I also deal with Hypermobile Ehlers-Danlos Syndrome.
Thanks for any ideas/thoughts you can share. Truly. Bless you.
If anyone can share insight about the process from here, I’d appreciate it!
I am a 51-year-old woman whose brain MRI with contrast shows “scattered nonspecific hyper intense foci”...and I think I’m still quite young for that.
For over a decade, we’ve been trying to chase down a diagnosis for my days-to-months-long “spells” —ones that include dizziness, extreme fatigue, blood pressure swings, eye pain/blurry sight, headaches, weakness, brain fog, muscle twitches, numbness/tingling, gastrointestinal stuff. They often come on when I get an infection, deal with major stress, and/or just physically overdo it.
I’d recently become passive-aggressive re doctors and just stopped chasing an answer. That is, until my latest “spell”—now lasting over a month with symptoms keeping me homebound—sent us to the ER. The doc there recommended an MRI and suggested something like MS.
That was two weeks ago.
Out of all the gastroenterologists, endocrinologists, rheumatologists, hematologists, allergists, internists (and yes...even a neurologist!) I’ve seen, not one ever suggested brain imaging!. The neurologist even suggested “conversion disorder”...i.e., I was TELLING my body it was sick. Ugh.
So...I go to my primary doc to request the MRI at the ER guy’s recommendation. I get it done, and the results are as mentioned earlier. I have an initial consult with a neurologist in two weeks, being very fortunate to get in so fast because I can self-pay.
I’ve waited several days to look at any info about MS because it was much easier to speculate and now harder to deal with facts.
That’s my story, really. I know many of you have struggled longer and harder for a diagnosis, and my heart goes out to you,
I guess I’m posting here because I wonder what happens next. My husband and I are pretty darned sure it’s MS at this point. I know it takes a long time and usually several tests to confirm it....so do you think it will it be much longer before I can receive treatment? AND can get on with LIFE...?
My family visits NYC at Thanksgiving every year, and I’m used to traipsing all over the city (in the past years, to my detriment). This is a “first-world” problem indeed, but I’m trying to grasp what the trip will look like for me this year and if I should do some extra planning.
I guess it’s kinda hard to anticipate next month when you don’t even know how much worse you’ll feel tomorrow. I also deal with Hypermobile Ehlers-Danlos Syndrome.
Thanks for any ideas/thoughts you can share. Truly. Bless you.
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