Feel too good Do I really need to test for MS because of numbness and weak legs

[Softrain]

Most of the time I feel fine but over the past 2 years I have had issues and doctor wants me to see a neurologist. My symptoms come and go, sometimes my legs feel like I’ve just run along way but I haven’t. Wobbly or Jelly legs. I get tremors in my hand but they go away and usually most severe after working, hands feel very uncoordinated at times. Touching my little finger to my thumb on left hand tends to always make it shake a bit. I feel internal shaking sometimes and sometimes my tongue shakes a bit. My face around mouth goes numb sometimes usually not bad but a couple times like I’d been to dentist. I have raynauds. I feel perfectly fine much of the time and just can’t bring myself to make the appointment when I’m feeling okay. Wouldn’t I feel worse? I know it would be good to just check but when you have no insurance I’d like to know it’s worth it. I’m in good health otherwise.

[oceanpride]

Just my thoughts but getting to the bottom of it might be wise. There’s treatments that taking early might save you a bit of trouble down the road. There’s a price tag on waiting too long too.

[Softrain]

Just my thoughts but getting to the bottom of it might be wise. There’s treatments that taking early might save you a bit of trouble down the road. There’s a price tag on waiting too long too.

But would they even know? I see people saying things like it took years to get a diagnosis, nothing showed up on the MRI early on, or they were told it was in their head. I guess Im just afraid there is not much to go on. On a bad day it is scary to feel your face numb, hands shake or legs weak but what can a neurologist test if I’m having a good day and does anything show up on an MRI this early?

[Jules A]

It sounds like its is more that you are afraid of what might be found, than feeling too good for testing right now, and I think we all can relate to those feelings. It is scary but not knowing, for me, would be more scary. I agree with Oceanpride and would explore this sooner rather than later especially if you are young.

These are significantly abnormal findings. You may or may not be someone who has clinical diagnostics indicative of MS or something else but without investigating it is likely whatever it is will progress which would be unfortunate if there is a treatment you could have been receiving. Unfortunately many neurologic deficits regardless of the cause are irreversible so being proactive, imo, is wise. I was diagnosed within a couple of days of seeking medical treatment so its not always a long road to an accurate diagnosis.

Regardless I would recommend figuring out a way to get insurance asap. Good luck and please keep us posted.

[Softrain]

Just feel crazy

Thank you, I have made an appointment for September. It’s hard when I feel good. I worry they find nothing and it’s a waste of money not that I want to find something. This whole coming and going of symptoms makes me feel a bit nuts. I’m not usually one to worry about things. Other then my birth and my babies this is the first time seeing a doctor in my 40 years.
Reading on here makes me see a few more things that might be signs like horrible itching on my face and neck but no rash. And debilitating intolerance to cold, I always thought heat was what was bad for ms. Guess I better bring these things up. How do you explain all the weird symptoms without sounding like a nut? I guess I’ll have to wait and see.

[KoKo]

Thank you, I have made an appointment for September. It’s hard when I feel good. I worry they find nothing and it’s a waste of money not that I want to find something. This whole coming and going of symptoms makes me feel a bit nuts. I’m not usually one to worry about things. Other then my birth and my babies this is the first time seeing a doctor in my 40 years.
Reading on here makes me see a few more things that might be signs like horrible itching on my face and neck but no rash. And debilitating intolerance to cold, I always thought heat was what was bad for ms. Guess I better bring these things up. How do you explain all the weird symptoms without sounding like a nut? I guess I’ll have to wait and see.

Hi Softrain

It would be wise to document your symptoms and take it with you to your appointment, then you won't have to try to remember everything.

My neuro was glad when I took my symptom list to my first appointment. He said that it was really helpful.

I wrote down examples of how some of the symptoms affected me in my daily life activities.

Also, many of us have both heat intolerance and cold intolerance.

Good luck with your appointment in September.

Take Care

[robert152]

Softrain,

Why no insurance? Our favorite server signed up for Medicaid through Obama care( in New Jersey) and pays no premium because of her income. If your income is to high for Medicaid in your state you can still get good insurance through Obamacare( affordable care act ) for a very low premium. Please have somebody help you research this.

[Softrain]

Neurologist won’t see me

So two days before my appointment the neurologist office called and said after reviewing my charts they don’t think they have anything to offer me neurologically and are canceling my appointment.????? Not sure what to do.?

Most of the time I feel fine but over the past 2 years I have had issues and doctor wants me to see a neurologist. My symptoms come and go, sometimes my legs feel like I’ve just run along way but I haven’t. Wobbly or Jelly legs. I get tremors in my hand but they go away and usually most severe after working, hands feel very uncoordinated at times. Touching my little finger to my thumb on left hand tends to always make it shake a bit. I feel internal shaking sometimes and sometimes my tongue shakes a bit. My face around mouth goes numb sometimes usually not bad but a couple times like I’d been to dentist. I have raynauds. I feel perfectly fine much of the time and just can’t bring myself to make the appointment when I’m feeling okay. Wouldn’t I feel worse? I know it would be good to just check but when you have no insurance I’d like to know it’s worth it. I’m in good health otherwise.

[SNOOPY]

Hi Softrain.

So two days before my appointment the neurologist office called and said after reviewing my charts they don’t think they have anything to offer me neurologically and are canceling my appointment.????? Not sure what to do.?

Did your Dr. send a referral to the Neurology Office? Sometimes that can be the difference between seeing a Neurologist or not. The Neurology practice I go to does not take any new patients without a Drs. referral. This is has nothing to do with my health insurance, but a requirement to be seen by one of their Neurologists.

You could contact the Neurology office for more detail/clarify as to why. You can contact the Dr. that wanted you to see a Neurologist and ask for a referral to a Neurologist.

[Temagami]

Might be worth pursuing a blood test for neurofilament light chain (NFL) which is significantly elevated in people with MS. I wonder if your primary doc. could order this test. It could possibly be the future biomarker for disease and progression. It has to be cheaper than seeing a neuro out of pocket or getting an MRI.

[SNOOPY]

Might be worth pursuing a blood test for neurofilament light chain (NFL) which is significantly elevated in people with MS. I wonder if your primary doc. could order this test. It could possibly be the future biomarker for disease and progression. It has to be cheaper than seeing a neuro out of pocket or getting an MRI.

Currently there is no blood test to help diagnose Multiple Sclerosis.

NfL’s use as a diagnostic marker for MS and other neurological disorders was limited due to lack of sensitive and reliable methods to assess it.

https://multiplesclerosisnewstoday.c...s-progression/

[Softrain]

So apparently My Dr. is considered a specialist so while he is trained as a primary care they won’t except a referral from him. It’s just dumb that they would make the appointment based on the referral then call after a month and say it’s canceled because “they have nothing to offer neurologically. “ why not tell me the real reason or better yet Why didn’t they just explain in the first place instead of waiting a month. Now I’m supposed to find a primary care doc and go over the whole thing just to be referred back and wait another month. Dumb! Not going to do it.

Hi Softrain.



Did your Dr. send a referral to the Neurology Office? Sometimes that can be the difference between seeing a Neurologist or not. The Neurology practice I go to does not take any new patients without a Drs. referral. This is has nothing to do with my health insurance, but a requirement to be seen by one of their Neurologists.

You could contact the Neurology office for more detail/clarify as to why. You can contact the Dr. that wanted you to see a Neurologist and ask for a referral to a Neurologist.