This is almost over. Sam has Hospice care... 2 weeks now and was transferred to a Nursing Home today for Respite Care. I realize this is more for my benefit than his, but I feel better knowing he is getting proper care... something I could not give him at home.
His nurse told me she did not think he would like 2 more weeks. Liver is failing, heart failure with AFIB.
I know this is not a MS post but some of you have been following my journey and I thought I should give you this update. This has been the hardest thing I have ever done. Calling Hospice is pretty final and I keep questioning myself. But they all tell me I did the right thing. I've had him home with me and have become so worn down trying to take care of him. I've forgotten to give meds, messed up just about everything at one time or another. He fell twice last week which really advanced the situation.
I've been crying for several days and am so weary and exhausted. The kids have been back and forth and now they are grieving.
Sorry to post this here. I know you all understand. Maybe someday I will be able to help someone else in this position.
His nurse told me she did not think he would like 2 more weeks. Liver is failing, heart failure with AFIB.
I know this is not a MS post but some of you have been following my journey and I thought I should give you this update. This has been the hardest thing I have ever done. Calling Hospice is pretty final and I keep questioning myself. But they all tell me I did the right thing. I've had him home with me and have become so worn down trying to take care of him. I've forgotten to give meds, messed up just about everything at one time or another. He fell twice last week which really advanced the situation.
I've been crying for several days and am so weary and exhausted. The kids have been back and forth and now they are grieving.
Sorry to post this here. I know you all understand. Maybe someday I will be able to help someone else in this position.
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