Just venting

[smalltowngirl]

Just need to vent, I guess. I’ve been a strong proponent of “retail therapy” for as long as I can remember. 😁Haven’t been shopping since my recent DX... until today. We went in just a few stores and I had to stop. I felt fine at the beginning of the day, but after some time, I just wanted to go home. My right leg (still numb) was irritated and my feet were super sore, as if I’d been on them all day long! I was exhausted— just from trying on clothes and walking from the car to stores. I guess I’m a little upset about this.

I’ve been doing better since my initial relapse that led to DX. I suppose I thought I could hang like I used to, but it was kind of a smack in the face that I hit a wall after a couple hours, and I just wanted to go home. So here I sit, in my bed, watching a movie. Guess this is more my speed now... I’m not terribly bummed. It just seems like MS doesn’t want me to forget I have a disease now.

[Jules A]

I'm sorry you had that happen.
I wouldn't totally abandon your attempt to aid our economy, lol, perhaps pick one or two stores and make it a quick trip? Or there is always my new favorite...online shopping.

[richjh101]

just venting

I have always been a pretty stubborn person. I walked longer than I should, used a can much longer than I should then used a manuel chair much longer than I should. I think what you are going it is a very normal reaction to the way you are feeling.

I was diagnosed so long ago that only two drugs being used at that time Betaseron and Avonex. They would give massive doses of Prednisone for acute exacerbations. They have come a long way in their understanding of Ms since I was diagnosed in 1984. Every case is different. Your MS will take a different course than mine and the thousands of others who have been diagnosed. The best advice that I can give is get a good MS specialist...........
Rich

[Poolwatcher]

Just need to vent, I guess. I’ve been a strong proponent of “retail therapy” for as long as I can remember. 😁Haven’t been shopping since my recent DX... until today. We went in just a few stores and I had to stop. I felt fine at the beginning of the day, but after some time, I just wanted to go home. My right leg (still numb) was irritated and my feet were super sore, as if I’d been on them all day long! I was exhausted— just from trying on clothes and walking from the car to stores. I guess I’m a little upset about this.

I’ve been doing better since my initial relapse that led to DX. I suppose I thought I could hang like I used to, but it was kind of a smack in the face that I hit a wall after a couple hours, and I just wanted to go home. So here I sit, in my bed, watching a movie. Guess this is more my speed now... I’m not terribly bummed. It just seems like MS doesn’t want me to forget I have a disease now.

I think we can understand what you’re saying and feeling. I am glad you vented. We all can feel less alone finding people who “get it”

[pennstater]

You could still be recovering from your relapse. This can sometimes take months, even a year. My first relapse took almost a year to get back to normal, with some lingering focus issues. So don't get too dow, you may still be able to marathon shop! If not, you will figure out your new limits. Enjoy the movies in bed!

[smalltowngirl]

Thanks for reading and responding! It makes a world of difference to know there are others who have been where I'm at. I appreciate you all.