SFound out this last Friday. Tomorrow consult with surgeon. Have had RRMS/secondary progressive for decades already. Was doing well on copaxone 3x week, plus Ampyra 10 mg bid. Now this. Read about effects of radiation re white cells, etc. Am thinking just cut the whole thing off...no radiation. Thanks for reading this.
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neuro says no reason not to do radiation...
adding this for general info -
Oh Jane, I'm sorry about this new diagnosis. I wish there was a limit on what a person was allowed to go through.
Please know that you are in my thoughts and my prayers. Feel free to share your story, your fears and about the decisions that you are forced to make with this dual diagnosis. We would love to support you through this difficult time.
Hang in there and keep us updated. We care!!!
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