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CHANGES AT MSWORLD - MSWORLD'S CLOSURE

We began with a mission and purpose to help others living with MS.

We were excited to get going!

And hit a few bumps along the way…

However, in all seriousness, we remain grateful for our amazing volunteers, members & all who have made MSWorld a valuable resource for all!

July 10, 2024, we celebrated the goodness of these past 28 years. With a heavy heart, we will be ending our services.

We need a financial miracle to keep going forward.

We thank all for your support.

MSWorld's website will close on October 16, 2024.

“I personally want to wish all of you the guidance to find this type of support, as so many do here. Also, my prayers and love extends beyond my understanding. It has been a pleasure to steward this journey.”

God Bless you, Kathleen

Kathleen Wilson
Founding President
❤️

we leave knowing that
we did our best and
stayed true to our mission and purpose.


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MEMBER TOPIC OF THE MONTH suggestions!

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    MEMBER TOPIC OF THE MONTH suggestions!

    Each month, we will feature a new topic that was suggested by YOU, our MSWorld members. MSWorld volunteers will review them, and select one for our "Member Topic of the Month."

    We welcome your suggestions! Please submit them here.

    Thanks, everyone, and watch for our "Member Topic of the Month," coming soon!
    Last edited by Seasha; 01-26-2017, 10:08 PM. Reason: changed title
    Kimba

    “When you change the way you look at things, the things you look at change.” ― Max Planck

    #2
    A few suggestions fo Member Topic of the Month...


    What a Great idea...

    Here are a few suggestions:

    Discussion of Finding an MS Specialist.

    How to ask for a Second Opinion.

    Is there hope for treatments coming soon for SPMS and PPMS?

    Discussion of Funny Stories.


    I look forward to lots of suggestions from others... !

    Time

    Comment


      #3
      I'd like to see more specific differences between the MS types.

      Not officially diagnosed due to non-MS-specific spots on MRIs, but the neurologists all agree it's MS.
      Frustrated. January 2019: finally saw an MS specialist worth seeing. Maybe we'll get to the bottom of this.
      EDSS of 5.5, sometimes 6.0

      Comment


        #4
        fatigue, zzzzzz, fatigue, zzzzzzz, fatigue
        vertigo too
        hunterd/HuntOP/Dave
        volunteer
        MS World
        hunterd@msworld.org
        PPMS DX 2001

        "ADAPT AND OVERCOME" - MY COUSIN

        Comment


          #5
          Topics of importance, generated by our members.

          locationScan the message boards to find common themes discussed, then list each topic in a general locatio that is easily accessable by all, address each topic as best possible wirh factual information pertaining to each topic. This will help clear misunderstandings.

          Comment


            #6
            mood swings
            hunterd/HuntOP/Dave
            volunteer
            MS World
            hunterd@msworld.org
            PPMS DX 2001

            "ADAPT AND OVERCOME" - MY COUSIN

            Comment


              #7
              Depression and feeling alone in your diagnosis

              Comment


                #8
                The 5 stages of grief. Denial, anger, bargaining, depression and acceptance.
                1st sx '89 Dx '99 w/RRMS - SP since 2010
                Administrator Message Boards/Moderator

                Comment


                  #9
                  Originally posted by Seasha View Post
                  The 5 stages of grief. Denial, anger, bargaining, depression and acceptance.
                  And the fact that it isn't a 'one time thing' but something that is dealt with over and over .

                  Comment


                    #10
                    ARE YOU AGING WITH MS?

                    Originally posted by Kimba22 View Post
                    Each month, we will feature a new topic that was suggested by YOU, our MSWorld members. MSWorld volunteers will review them, and select one for our "Member Topic of the Month."

                    We welcome your suggestions! Please submit them here.

                    Thanks, everyone, and watch for our "Member Topic of the Month," coming soon!
                    REACHING 'OLD AGE' WITH MS CARRIES WITH IT A WHOLE NEW SET OF AGING WITHMS ISSUES!
                    HOW DO OTHERS COPE WITHTHIS DOUBLE WHAMMY?

                    Comment


                      #11
                      Unusual symptoms and other ailments connected to MS.

                      How to get doctors to work together instead of blaming EVERYTHING on MS and expecting that we suffer in silence.

                      Comment


                        #12
                        Undiagnosed

                        I know how you feel. Still undiagnosed although my neurologist believes it is MS but my lesions are not specific enough. Still see him every three months to see progress. Very frustrating.

                        Comment


                          #13
                          Originally posted by Lilianap View Post
                          I know how you feel. Still undiagnosed although my neurologist believes it is MS but my lesions are not specific enough. Still see him every three months to see progress. Very frustrating.
                          Have you thought about getting a second opinion from another Neuro who is an MS Specialist?

                          Comment


                            #14
                            Topic of the Month

                            Topics of the Month Suggestions:

                            1) How to figure out what symptoms are a medical, non-MS issue...is it a heart attack or just costochondritis again? Did I pull a muscle or is it a muscle spasm? Has my vision changed and I need new glasses or is it optic neuritis?

                            2) How to control heat intolerance.

                            3) Controlling the WHAT-IF demon. Today I feel good. I'm 40 now, what if I can't walk when I'm 50, what if I wake up tomorrow and can't see.... what if I have to have another steroid infusion....and the list goes on.

                            4) How to help family members understand what we go through, what we need from them, and what they can and cannot expect from you.

                            Thanks-
                            AJ

                            Comment


                              #15
                              this isvery similar to number four from above, how to ask others for help
                              hunterd/HuntOP/Dave
                              volunteer
                              MS World
                              hunterd@msworld.org
                              PPMS DX 2001

                              "ADAPT AND OVERCOME" - MY COUSIN

                              Comment

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