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lesions shrunk ?

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    lesions shrunk ?

    I've had sx for about 4 yrs but was finally diagnosed this year. I had an MRI done in 2012 and one in the beginning of this year. I went to see another ms specialist that I found today and he finally explained my mri's to me. But what he also said was that one of my biggest lesions has shrunk in size. Others that were small stayed the same if anything and one didn't show up in the recent MRI. Is it possible to heal without taking any DMD? Because I just started copaxone in march which was 2 months after my last MRI. And before I started all these meds I was able to return to actual normal but now I have a new "normal" I guess which I still feel like crap.

    #2
    Your body has the ability to remyelinate. The problem is that eventually the MS inflammation process that leads to demyelination proceeds faster than the healing can repair. When your body produces new myelin, the repair is not as thick and strong as what it should be- think shoddy road repair of pot holes. That is my understanding.

    My approach is to avoid inflammation so that my body has a quiet time in which to do the repairs. This means avoiding dairy, gluten, non-fermented soy and sugar in it´s added forms. Please read the NYtimes magazine section article from April 2011 about sugar- it is inflammatory- even in the brain.

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      #3
      Your body tries to heal damage whether it is on your skin or in your brain. The drugs currently available do not directly repair damage through remyelination, but rather prevent damage to begin with. MS drugs try to prevent lesion development, reduce relapses, extend periods of remission, etc. The MS drugs can suppress the disease offering your allowing your body a greater opportunity to repair damage.

      There are multiple drugs in development that help remyenlination and others that are neuroprotective in nature. It's just a matter of time before we have a multi-pronged defense against MS attacks.

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        #4
        Are others avoiding "inflammatory foods" and not progressing? Or are still?

        Originally posted by Temagami View Post
        My approach is to avoid inflammation so that my body has a quiet time in which to do the repairs. This means avoiding dairy, gluten, non-fermented soy and sugar in it´s added forms. Please read the NYtimes magazine section article from April 2011 about sugar- it is inflammatory- even in the brain.
        Seeing that I posted a similar type of post, I am curious about this connection between popular inflammatory foods and MS inflammation.

        I am curious how much people believe the above. I am doing this just to try something as it doesn't really inconvenience me. I have avoided all sugar, dairy, gluten, soy, corn, alcohol, caffeine, potatoes, etc.

        I do not know if that is helping me or if it's because it's just my course of MS. I would really love to know that.

        Do neurologists believe this? If they did wouldn't they be recommending it? Especially the sugar connection with the NYT article.

        Or does inflammation due to those foods only happen to some people and not others? Aren't there more documented studies about this with MS folk?

        And fwiw for whoever feels like replying is anyone following this route of avoiding such popular "inflammatory" foods and not progressing or noticing a difference? Or staying the same?

        If this could be proven and someone could do a study not influenced by big pharma wanting to make money, maybe this could make a real difference in people's lives.

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          #5
          Originally posted by Marco View Post
          Your body tries to heal damage whether it is on your skin or in your brain. The drugs currently available do not directly repair damage through remyelination, but rather prevent damage to begin with. MS drugs try to prevent lesion development, reduce relapses, extend periods of remission, etc. The MS drugs can suppress the disease offering your allowing your body a greater opportunity to repair damage.

          There are multiple drugs in development that help remyenlination and others that are neuroprotective in nature. It's just a matter of time before we have a multi-pronged defense against MS attacks.
          So there is stuff actually out there to help with repairing and healing of damaged nerves?

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            #6
            Originally posted by pitlover91 View Post
            So there is stuff actually out there to help with repairing and healing of damaged nerves?
            Please look into The Myelin Repair Foundation:
            http://www.myelinrepair.org/

            This Foundation has been researching Myelin repair for quite some time.
            Diagnosed 1984
            “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

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