A rant....for the Cause!

[opiegirl]

I've had a couple of bad days and want to just scream at this stupid disease and say, "What is causing this?!?" Something is causing my body to attack itself, what is it? We all have a common thread....What is it?

Take the meds, don't take the meds, follow a strict diet, don't drink alcohol, all the stupid Dr.'s appts, supplements up the ying yang...part of me wants to throw in the towel. But I won't, because I have to persevere. That's what we do, right?

It's good to have this site to vent. Other people don't get it...no matter how much they want to. My three sisters always want to give me advice...I DON'T WANT ADVICE!

I just want to do what I want to do...go on a walk, hike with my dog...but instead I worry if I'm going to be able to get out the door and make it to work.

What causes this? Ugh, it's like a burning question in me. What are these scientist and specialist doing to figure out what causes this? I know big Pharm is succeeding in creating new drugs for all of us to take to treat the disease once we get it....but why are we getting it? What is causing our body to attack the myelin sheath?

[AnneLouise]

That's what I want to know. What caused this?

I thought I was a healthy person. And exercise? I loved being physical. Never shied from hard work. "Gotta do something" was my motto.

At this point, I not only want a cure but I want to repair the damage!! As a neuro once said, "Once the damage is done, it's done."

I wonder what I did or didn't do.

[opiegirl]

I don't want to believe that the damage can't be repaired. That's where stem cells come in.

We need more stem cell clinical trials!

[Temagami]

A wee bit o good news- there is an inverse alcohol-MS relationship - meaning- have a glass of vino sans guilt.

[misslux]

Yes to all of the above!

[Tawanda]

Love this rant...had to double check the signature to make sure it wasn't mine!. I guess I have some competition for the "Person with the Most Contempt for M.S." award!

Vent away. That's what this place is for. For the past 10 years since diagnosis it seems like the highlight of my day is when I give into my fatigue and crawl into bed. Having M.S. sucks in a such a unique way that no one, unless the have M.S. themselves, will EVER get. Thank you MSW for giving me a place to grieve and dump without burdening my friends and family in the real world.