Anyontpe have/know of a neurologist with MS?

[Thinkimjob]

Good Lord we need a."save" button.

[football-mom]

Yes, we have one here in Colorado.

[MSW1963]

There was a neuro w/MS who posted on line, many of the same kinds of doc complaints we 'regular' MS people post about. He may have published some of his work, but I haven't heard a thing from or about him for about 10yrs. I still think about him from time to time, but I've lost track of any trace of him on the net'.

[Seasha]

Yes, I had one a few years back and it was nice to have a neuro that certainly "got it"! Unfortunately, that neuro moved away.... I was sad, as it was the best one I've ever had.

[Thinkimjob]

Sorry about illegible post. I had nearly finished, at great length, then I pressed something and it all vanished, and what remined made it through, spell-check free.

I do believe MS is one of those conditions where you just can't "get" it, 'til you've got it.

Sympathetic and kind the best may be, but I don't think they can know how it really feels.

Drip-fed information truly annoys me. Every new thing that has happened, I get, "oh that's to be expected" from the doctors. Except for pain, that apparently doesn't exist.

That said, it must be hard to know how much of the truth they should tell.

And they're always a bit perturbed if you tell them you've looked up information on the internet. Yes, it's reputable, it's Cleveland Clinic site.

[Kimba22]

Yes, there is a neuro in my area that has MS. Of course, had no idea why the doc had a limp. Eventually, I learned why she was so easy to talk to!

That said, it must be hard to know how much of the truth they should tell

It must be hard to already know ...

[dyin_myelin]

Professional to professional calls it "the dread disease." I had to scroll up to the top of the publication, 1805? 1940? 2012. And on cafe pharma, where the drug reps post, "it doesn't matter what we sell these people, they all wind up in a wheelchair anyway." My neuro is upbeat, but she publishes and works with brain tumors mostly.

[Thinkimjob]

I always ask neurologists, "If you had MS, which drug would you take?" Or "If your daughter had MS, which drug would you put her on?"

They do think quite a bit longer about the second question. I've had two switch from Tysabri is great to Copaxone's not so bad, after they had to give me an answer to that.

The other conversation~stopper is "what about quality of life?"

There must be a lot of doctors and nurses out there with MS. And drug reps. I wonder which one they go for, as the least worst best option?

[hope32]

No but my NP (who I'm now seeing exclusively under another MS specialist's supervision since my own MS specialist just retired) has MS and I love that she really does "get it."