How do you know when you transition from Relapsing Remitting to Secondary Progressive MS?
Although my last several MRIs have been stable (no new lesions) just the same old damage (lots of T1 & T2 lesions), I wonder if I am SPMS? I know not to put too much on a label, but I continue wonder.
What's known? MS Progresses (20 years since dx) DMD: Slows Progression (Avonex 16 years) Last overt relapse: 2007 (left side numbness several weeks left residual damage). 2003 bout of ON also left residual damage.
Now, I am in my mid-40's and my sx have gotten worse (fatigue, bladder, balance, etc.) but doesn't everything get worse with age? I still "look so good" but I've been on SSDI for a few years now. I am so thankful for SSDI.
Avonex is a lifelong commitment and I maintain tx. Because of rx laws, I know a SPMS label is a barrier to many DMDs, yet I still ponder the SP transition.
Why am I "obsessed" with the SP label? Does it even matter? Simply seeking feedback from my fellow MSers.
Thanks, in advance, for chiming in!
Although my last several MRIs have been stable (no new lesions) just the same old damage (lots of T1 & T2 lesions), I wonder if I am SPMS? I know not to put too much on a label, but I continue wonder.
What's known? MS Progresses (20 years since dx) DMD: Slows Progression (Avonex 16 years) Last overt relapse: 2007 (left side numbness several weeks left residual damage). 2003 bout of ON also left residual damage.
Now, I am in my mid-40's and my sx have gotten worse (fatigue, bladder, balance, etc.) but doesn't everything get worse with age? I still "look so good" but I've been on SSDI for a few years now. I am so thankful for SSDI.
Avonex is a lifelong commitment and I maintain tx. Because of rx laws, I know a SPMS label is a barrier to many DMDs, yet I still ponder the SP transition.
Why am I "obsessed" with the SP label? Does it even matter? Simply seeking feedback from my fellow MSers.
Thanks, in advance, for chiming in!
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