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CHANGES AT MSWORLD - MSWORLD'S CLOSURE

We began with a mission and purpose to help others living with MS.

We were excited to get going!

And hit a few bumps along the way…

However, in all seriousness, we remain grateful for our amazing volunteers, members & all who have made MSWorld a valuable resource for all!

July 10, 2024, we celebrated the goodness of these past 28 years. With a heavy heart, we will be ending our services.

We need a financial miracle to keep going forward.

We thank all for your support.

MSWorld's website will close on October 16, 2024.

“I personally want to wish all of you the guidance to find this type of support, as so many do here. Also, my prayers and love extends beyond my understanding. It has been a pleasure to steward this journey.”

God Bless you, Kathleen

Kathleen Wilson
Founding President
❤️

we leave knowing that
we did our best and
stayed true to our mission and purpose.


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Medically released from job.

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    Medically released from job.

    Was informed 2 weeks ago that I was being medically released from job. Received termination papers in the mail. I do understand the company's position. Been on STD and LTD for over a year, and still on company's LTD. Was told that as long as I medically qualified I could receive LTD up to retirement age. The amount I received is more that SSDI would provide. Still it hurts losing yet another thing from MS. Now doctor is talking about talking my driver's license away. Don't drive that much, but having it is a sort of symbol.
    Diagnosed RRMS 6/21/2013
    Devices: Roller/Walker, Nov 2013:
    Started Avonex July 2013

    Carolina Girls - "Best in the World"

    #2
    I'm sorry for your losses and hate this monster disease.
    He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
    Anonymous

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      #3
      I am sorry too. It is so hard to stop working, especially when it is not your choice. It was a really hard decision for me to stop working but I am glad I made it at the time now looking back. I hope for you that you will look back on this and realize that perhaps this was the best for you. I know it hurts now, but now you don't have to worry about when you are going back. For now though, it just sucks.

      I hope you feel better soon.
      Take care
      Lisa
      Moderation Team
      Disabled RN with MS for 14 years
      SPMS EDSS 7.5 Wheelchair (but a racing one)
      Tysabri

      Comment


        #4
        I'm really sorry to hear about these losses for you. We need a cure for this horrible disease. In the meanwhile, we can but carry on and be as strong as possible.

        Comment


          #5
          I'm terribly sorry and realize how hard it is. The same thing happened to me over the past year so I can relate. A year later I am finally starting to see the benefits of not going to meetings, sitting in traffic, having deadlines hanging over my head and all the other stresses of work. Even when realizing some of the benefits it is still a mental blow to lose something that once had such prominence in our lives.

          Even now I struggle with what to do with some of my "free" time. I know this is a period of time when my job is to get healthier and maintain the best life possible.

          I would encourage you to understand the fine print of your policy and ensure you follow it closely. My LTD company requires that I go to the doctor a minimum of once every 12 months (simple for me) or benefits terminate. Also, did you receive a "premium waiver due to disability" for any life insurance policy you were covered by?

          Again, I am sorry for your loss and wish you only the best.

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            #6
            If you have been on LTD for a year, I would think you've been "medically released from your job" a year ago? Have they been considering you an employee all this time? That seems weird.

            Yes, your LTD is payable through retirement age. To have this "official release" at this point...I don't know. In any case, career is a big loss. Sorry you have gotten to this point. Hopefully, the LTD is stable and gives you a decent financial edge.

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              #7
              I went through a similar situation. After I went on LTD, within a year they required me to apply for SSDI. That was granted about a year later. After I started receiving SSDI, that company paid me a wonderful "salary" of $50 a month. But I still was considered employed through their eyes.

              I stayed on LTD through the company for a total of 5 years. Earlier this year, I received a letter stating that I would be terminated. Even with the termination I will continue to receive the $50 a month until I reach age 65.

              It's a small amount, but it helps pay some of the bills you know? So each company is different as is everyone's experience with MS.

              I wish you the best of luck. It's hard, no denying that. And a blow to lose those things that were once a seemingly gimme in our lives. I now try to concentrate on the things that I can do rather than what I cannot do. Give it some time to sink in. Be Strong!! Hugs.

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                #8
                meb; I did not cope well, at all after being medically released. It took year of psychotherapy for me to finally accept it! You may need to consider that, too! fed

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