I'm not sure what is important to report or not

[amyrising]

I woke up in the middle of the night with some vertigo. I couldn't tell which way was up. I stumbled to the bathroom and made it back to bed. I continued to drift in and out of sleep, waking up every time the bed started to spin. I could also feel my arms and legs twitching. It was almost like my muscles were having hiccups, or like popcorn under my skin. It was painless, just annoying. I could also feel the sensation of my muscles tightening up, but no pain. The area went tingly numb. This morning I am dizzy and nauseas. I'm not sure what is worthy of reporting and what is not

[mercadies25]

If you can't deal with it and it is causing you concern Call the neuro and tell them.

I have learned that unless it's really bad and I just can't handle it I don't bother calling.

There is no cure for this desease and every day is a new journey.

I don't like and will not take steroids and that's what they ususally prescribe so I don't bother unless it affects me in a very bad way.

I just rest and stay in bed till it passes hopefully.

So it's up to you.

Good luck and feel better.

[misslux]

Do you keep a symptom log? I log everything and just give my specialists a rundown of everything and if it happened more than once, etc.

[22cyclist]

I report only weakness because I know that this is the only thing my neuro treats. I do, however, report new dizziness and nausea as they may be related to new brainstem lesions. So, if I were you, I would give them a call.

Take care
Lisa
Moderation Team

[SNOOPY]

I'm not sure what is worthy of reporting and what is not

Reporting everything is not necessary, however, if you are concerned about what you are feeling or experiencing then please contact your Neurologist for advice.

Maybe you are headed for a relapse (a worsening of current symptoms and/or new symptoms that last more than 24 hours continuously) or maybe not. Symptoms can come and go.

Not all relapses (exacerbation, flare-up, attack) require steroids but many symptoms can be treated with Symptom Management Medications.

[marybenes]

When in doubt, report it. That's what doctors are there for.

[MSer102]

When in doubt, report it.

I agree. With time you'll get a better feel for what should be reported and what can wait until the next routing follow up visit. Plus, reporting things will give you a good idea of how your neurologist responds to your reports. Some are helpful and gracious and have their staff person get back to you withing a day or two. Some will just ignore your calls. That can give you an idea of whether your neurologist is a "keeper" or a jerk who should be replaced ASAP.

I've found that a lot of general neurologists are used to stroke or Alzheimer's or movement disorder or injury patients who don't have flares and whose symptoms don't change much day to day, and they aren't used to MS patients who can have a serious flare or changing symptoms at any time, and they don't like the inconvenience and/or they don't know what to do.

So if you aren't sure what to report, report it and find out how helpful your neurologist is.

[dyin_myelin]

I use the GP for sx management since Hades will freeze over before I'm able to get an apt. with my neuro. I mention everything so he writes it down, I never want to go on SSDI but if I need a short term break there's documentation of le downward spiral. Some things that others would go to ER or make an apt. for I just make a note of for future vists, faintness, chest pains, blurry vision, left-sided weakness-I know it's just my immune system gnawing on my brain.

[amyrising]

Thank you. I am going to call today just as a precaution. I'm not feeling much better.