Hello
So I was diagnosed Aug 30 when severe nystagmus sent me to the ER. They kept me for 5 days, pumping that good ol prednisone into me and starting me on baclafen & klonipin. Now, 17 days later, I've returned to work but only part-time, just 4 hours a day per my drs. orders. After 1 day back, I wonder if it's too soon. My eyes still arent right, resulting in a raging headache after a couple hours of looking at the computer. Being at work is exhausting - the fatigue is kicking my butt. Tasks that were a piece of cake before, I just can't deal with and it frustrates me to tears. I'm on short term disability which is covering my pay.
How long are most people out after a flare up? I have no mobility issues, and the MRI showed no active lesions (though something set off my eyes). It seems to all be in my head - cognition problems and eyes, although I am a bit unsteady/unbalanced on my feet.
Also - does this fatigue go away?? As this whole thing fades away with time, will I get my energy back? I've had a few days where I felt so much better! A few days ago I thought it was over - I felt normal! But then it all came back. Is this normal?
I haven't started treatment yet - I need to choose either tecifidera, tysabri or copaxone. I still need to get a blood test for that virus. When i do start one, if I'm still feeling crappy at that time, will it help end this current flare?
Thanks for any info... This is all brand new to me.
Cheers
Jessica
So I was diagnosed Aug 30 when severe nystagmus sent me to the ER. They kept me for 5 days, pumping that good ol prednisone into me and starting me on baclafen & klonipin. Now, 17 days later, I've returned to work but only part-time, just 4 hours a day per my drs. orders. After 1 day back, I wonder if it's too soon. My eyes still arent right, resulting in a raging headache after a couple hours of looking at the computer. Being at work is exhausting - the fatigue is kicking my butt. Tasks that were a piece of cake before, I just can't deal with and it frustrates me to tears. I'm on short term disability which is covering my pay.
How long are most people out after a flare up? I have no mobility issues, and the MRI showed no active lesions (though something set off my eyes). It seems to all be in my head - cognition problems and eyes, although I am a bit unsteady/unbalanced on my feet.
Also - does this fatigue go away?? As this whole thing fades away with time, will I get my energy back? I've had a few days where I felt so much better! A few days ago I thought it was over - I felt normal! But then it all came back. Is this normal?
I haven't started treatment yet - I need to choose either tecifidera, tysabri or copaxone. I still need to get a blood test for that virus. When i do start one, if I'm still feeling crappy at that time, will it help end this current flare?
Thanks for any info... This is all brand new to me.
Cheers
Jessica
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