Hi to all,
My question/concern is about the possibility of permanent and irreversible eye damage in MS and has become a deep worry to me due to symptoms in the past three years: optic neuritic and nystagmus. I now have both symptoms and my vision has consequently become really bad. I cannot drive and have great difficulty reading. I am not on any DMDs but will be hopefully in the coming year and am praying this can help me and can perhaps reverse some of the existing damage.
My great fear is that some eye damage is irreversible. Especially because I have transitioned to SPMS from RRMS, which seems to have occurred mid-2010. This distinction between RRMS and SPMS has been in my case very important, apparently, as Cortisone reversed my MS symptoms in RRMS (including a bout with double vision) but was ineffective when I tried it about a year ago. So I am very worried that I have waited too long too take a DMD such as Tysabri, as I have read on this forum of good results with Ty in SPMS.
That was my motivation for starting this thread: I am wondering about the possibility of irreversible eye damage in SPMS and about the length of time one can go without a DMD without incurring irreversible eye damage? If anyone has experienced eye symptoms, especially in SPMS and could share, that I would appreciate very much.
Cheers,
ratsuchend
My question/concern is about the possibility of permanent and irreversible eye damage in MS and has become a deep worry to me due to symptoms in the past three years: optic neuritic and nystagmus. I now have both symptoms and my vision has consequently become really bad. I cannot drive and have great difficulty reading. I am not on any DMDs but will be hopefully in the coming year and am praying this can help me and can perhaps reverse some of the existing damage.
My great fear is that some eye damage is irreversible. Especially because I have transitioned to SPMS from RRMS, which seems to have occurred mid-2010. This distinction between RRMS and SPMS has been in my case very important, apparently, as Cortisone reversed my MS symptoms in RRMS (including a bout with double vision) but was ineffective when I tried it about a year ago. So I am very worried that I have waited too long too take a DMD such as Tysabri, as I have read on this forum of good results with Ty in SPMS.
That was my motivation for starting this thread: I am wondering about the possibility of irreversible eye damage in SPMS and about the length of time one can go without a DMD without incurring irreversible eye damage? If anyone has experienced eye symptoms, especially in SPMS and could share, that I would appreciate very much.
Cheers,
ratsuchend
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