There's a book a friend got me called The First Year: Multiple Sclerosis. It was written by a medical writer with MS named Margaret Blackstone. So much of what she wrote [You may find yourself angry seeing people not taking care of themselves, especially if you've lived a healthy lifestyle] I could empathize with and it made me feel normal. Yes! I see people smoking and want to smack the back of their heads.
Even though I teach art I could tell there was CNS involvement and I was pretty much [expletive deleted]. I glomed onto the thought maybe it was Lyme Disease. I also went on a quest to remove the "clerical error" of having a CIS recorded as MS, but the neuro pointed out past lesions, even though I was asymtomatic. (Well, remembering back I had had trouble swallowing but thought I was being dramatic.)
I think it's normal to want to deny something like this. I've kind of transitioned to "I wish this never happened" or "I hope there's a medical breakthrough" or just living for that groggy moment when I wake up and forget I have it for a fewe minutes.
Even though I teach art I could tell there was CNS involvement and I was pretty much [expletive deleted]. I glomed onto the thought maybe it was Lyme Disease. I also went on a quest to remove the "clerical error" of having a CIS recorded as MS, but the neuro pointed out past lesions, even though I was asymtomatic. (Well, remembering back I had had trouble swallowing but thought I was being dramatic.)
I think it's normal to want to deny something like this. I've kind of transitioned to "I wish this never happened" or "I hope there's a medical breakthrough" or just living for that groggy moment when I wake up and forget I have it for a fewe minutes.
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