Just a bit of a rant.....

[chipmunk5150]

I just don't even feel right in my own skin anymore. My specialist says no changes seen in my neuro exam....but I feel so disconnected from my body. I can feel things changing. More numbness, confusion, pain (which I haven't really had before), vision changes, etc...etc...etc. My next MRI isn't supposed to be until January. I questioned this based upon the way I feel, but he said that there are no clinical signs to warrant one sooner.
I'm frustrated. I know we all are, but I can barely control it sometimes. I want to scream, cry, throw myself off a cliff (metaphorically speaking). I can't sleep, and I can't get up. And nobody understands. Sometimes seems as if nobody cares. And I don't complain.....ever. They wouldn't get it, anyway.

[SNOOPY]

Hi chipmunk,

If you were to have a MRI what do you feel that would do? Having a MRI would not change how you are feeling and it might not even show any changes.

A good neuro "treats the patient not the MRI." Your neuro should be addressing your symptoms and based on his professional experiencing possibly offering you medications or suggestions in how best to deal with how you are feeling.

If you are having vision problems it is best if you are evaluated by a Optometrist or Opthamologist, the eyes are their specialty.

I feel so disconnected from my body. I can't sleep, and I can't get up.

This may not be a MS issue. It may be a Mental Health issue. You may want to talk to a Mental Health Professional for an evaluations of those problems. It's a shame if your neuro did not offer you help in dealing with how you are feeling.

Take care...

It's important to remember not everything we experience is from MS.

[Brittan]

I just don't even feel right in my own skin anymore. My specialist says no ....but I feel so disconnected from my body. I can feel things changing.

I personally believe that many MSers feel this way because so many things are going on with your body and you can not control it. You don't feel like yourself anymore because do all the things you once did. It is frustrating.

I would speak to your neuro about gabapentin and see if he can prescribe it for you. It helped me with some of the symptoms and took the edge off of the pain and helped me sleep through the night better.

Have you've been diagnosed with MS? or still in lymbo? If you have not been diagnosed with MS has your neuro only done the mri? If yes, of what ... c-spine, head, thorac?

My brain showed no lesions but my neuro said 1 in 10 do not w/ ms so other means are needed such as a VEP and LP plus other blood tests to rule out other illnesses such as Lupus, Lyme's, sjogren's, b12 deficiency, diabetes, etc.

If you are already diagnosed w/ ms then he should be treating the symptoms and I think that w/ gabapentin. If you are already on gabapentin then maybe a higher dose is in order. I take 2 600mg a day - 1 in the morning and 1 at night. It helps but I could probably use an increase because the pain is getting unbearable.

Good luck!