I've been Dx for what will be 2 years in Nov. and been on Copaxone for a year and a half. I'm still struggling with talking about it. I feel like I've closed myself off a bit but it seems like talking about it makes it so much more real.
I don't tell people my symptoms I just keep going as I am. But the few times I have told people my symptoms they seem to blow them off or with the fatigue in praticular say I know I'm sooo tired too. I'm thinking NO you don't get it! I know that there is really nothing the can do about it so I try not to get upset becuase really they probably just don't know what to say.
I haven't really posted on the board but I do read it. I think that just goes again with the feeling of if I talk about it in anyway it's just to real. Is this normal? I'm just not sure. I hate that when I go to the Dr. and have to say I have MS it makes me sick. Just typing that made my anxious.
I just want to be okay with it I just don't know how to get there. So far the only coping I've done is out of sight out of mind besides crying for almost the whole first year.
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
I don't tell people my symptoms I just keep going as I am. But the few times I have told people my symptoms they seem to blow them off or with the fatigue in praticular say I know I'm sooo tired too. I'm thinking NO you don't get it! I know that there is really nothing the can do about it so I try not to get upset becuase really they probably just don't know what to say.
I haven't really posted on the board but I do read it. I think that just goes again with the feeling of if I talk about it in anyway it's just to real. Is this normal? I'm just not sure. I hate that when I go to the Dr. and have to say I have MS it makes me sick. Just typing that made my anxious.
I just want to be okay with it I just don't know how to get there. So far the only coping I've done is out of sight out of mind besides crying for almost the whole first year.
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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