I have always had the 'it could be worse' attitude with my MS. Lately its gotten worse, I've gone from RRMS to SPMS, in the past 14 months I've had only 3 periods of about a week each where there were no issues.
My problem is that I got some good advice from my dad upon DX, he said 'never feel sorry for yourself, it'll only bring you down, your husband and kids too,'. So I never did, no matter what I've always been positive. I didn't host 'one-person-pity-parties'. Now that I am not as mild as it was before, I'm having lasting issues and my physical self is on a decline. And it is making me upset because I decided upon DX that I would remain as mild, no big deal, I can handle that. Well, the course has changed and my decision doesn't matter. This reality and the with struggles I'm having daily I'm having a hard time with the glass half full attitude. This progression has me emotionally upset and its hard to be positive when I'm upset. I'm not feeling sorry for myself, I don't know quite how to describe it, but I'm having lots of feelings about this and I've lost my way to being upbeat and I need to find it again.
Any words of advice?
My problem is that I got some good advice from my dad upon DX, he said 'never feel sorry for yourself, it'll only bring you down, your husband and kids too,'. So I never did, no matter what I've always been positive. I didn't host 'one-person-pity-parties'. Now that I am not as mild as it was before, I'm having lasting issues and my physical self is on a decline. And it is making me upset because I decided upon DX that I would remain as mild, no big deal, I can handle that. Well, the course has changed and my decision doesn't matter. This reality and the with struggles I'm having daily I'm having a hard time with the glass half full attitude. This progression has me emotionally upset and its hard to be positive when I'm upset. I'm not feeling sorry for myself, I don't know quite how to describe it, but I'm having lots of feelings about this and I've lost my way to being upbeat and I need to find it again.
Any words of advice?
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