I have been on Avonex for 2 months and just last week I started getting lightheaded everyday and feeling dizzy some of the time. Called my neuro Friday and they still haven't called me back, the receptionist said if you feel that bad go to urgent care... really.. they wont be able to help me with this, will they?? I felt fine until now and I hate to get up and walk I'm so lightheaded. What should I do???? new neuro and they don't call back for 48 hours???
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Urgent care probably can't help you but the emergency room might be able to since they can call your neurologist or have a neurologist of their own on call. The ER doc can decide if your having an MS flare and can start you on IV steroids if need be. Sometimes ER visits go well for people with MS and sometimes they don't because the ER doctor doesn't have a clue about MS. You might have to help him out some.
That's pretty discouraging that your new neuro didn't call you back.
Is your new neuro an MS specialist or a general neuro? I've found that general neuros don't like dealing with conditions like MS that can change suddenly and they send those patients off to urgent care and ER's for somebody else to take care of first. If it is an MS specialist who isn't calling back then you have my sympathy.
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Have you checked your blood pressure? I had low blood pressure and felt dizzy and lightheaded from it. Maybe start with calling your family doctor as well and let them know how you are feeling. But I also got so dizzy that I could barely walk or take a shower and I did need steroids for that from the neuro.
I pray you feel better soon.Comment
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finally heard back from my neuro.. I have to go see him tomorrow, not sure if its the meds or not but feel like I am in a trance or space. I'm am so worried I will have to get off Avonex since this ismy 3rd medicine. The other 2 gave me issues as well. Anyone know of any med that helps that's not a inferon?Comment
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Copaxone is approximately as effective as the interferons and has a good safety record.Originally posted by NLay View Post1st sx 11/26/09; Copaxone from 12/1/11 to 7/13/18
NOT ALL SX ARE MS!Comment
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Copaxone
Took copaxone for awhile in 2009 but had issues and had to stop. Thanks tho!Comment
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So frustrated
Went to my dr and he said its fatigue and gave me nuvigail. Really don't think it's that, have fatigue a lot but this is different but he didn't want to listen I guess?????Comment
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Bummer! My fatigue never made me light headed. What are you going to do now?Comment
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??
I don't know what I'm going to do, probably find a new neuro that will listen to me,. Hate to go down that road but its like he is always too busy to talk at my appointments. dunno???Comment
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sorry
Hi I cant really help you, but I did want you to know, I feel bad for you, and hope you get to the root of the problem,
i have just joined the forum.
i have suspected ms, as i have all symptoms of it.
So just on here looking for answers and support.
I hope your light headedness goes away soon.God grant me the serenity to accept the things I cannot change; courage to change the things I can; and wisdom to know the difference.
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