Announcement

Collapse
No announcement yet.

Dx changed from MS to Lyme

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Dx changed from MS to Lyme

    My diagnosis was changed from MS to Lyme. Got a positive test result for Lyme. Now on antibiotics for Lyme. MS symptoms were the same as Lyme.

    #2
    That will be great if you don't have MS and your symptoms are only a result of Lyme. There are quite a few of us here that have had both.
    He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
    Anonymous

    Comment


      #3
      The Lyme doctor I went to said that Lyme can trigger MS.
      I'm so hoping I don't have both.

      Comment


        #4
        There is one thing that you should be aware of. If you are taking the standard treatment for Lyme disease, you will get a 'massive' dose of anti-biotics. That is fine to fight the Lyme but it plays hell on your healthy bacteria. So you need to work like crazy to keep your 'good bacteria' levels up to good levels. The same is true of treating UTI's. I don't know the answer to that conundrum. I am not a doctor. But doctors don't always put that part of the picture in focus.
        I am glad to hear that you may be out of the MS community, because Lyme disease is 'treatable'. I would suggest that you get blood tests for vitamin D, B-12 and magnesium and get those things 'optimized'. Good luck

        Comment


          #5
          Originally posted by Shiela View Post
          The Lyme doctor I went to said that Lyme can trigger MS.
          I'm so hoping I don't have both.
          As far as I know there is no criteria or certifications that I am aware of to become a "Lyme specialist" so that always makes me suspicious.

          I have never heard that it can cause MS and would urge you to see a MS specialist again. Thankfully I got Lyme Disease long after my MS diagnosis so there wasn't the cross over. I did a short course of Doxycycline and was fine.

          As tempting as it would be to get rid of a MS diagnosis I'd hate to take the chance on being misdiagnosed and not addressing the MS if it is there.
          Good luck.
          He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
          Anonymous

          Comment


            #6
            I was thinking about that too. I figure if I get treated for the Lyme and get rid of it and the symptoms are still there, then I'll know that it's MS on top of Lyme. Hoping for the best. Thanks for your replies.

            Comment


              #7
              Wow, I suppose that's like winning the MS lottery. I wish you a full recovery.

              Comment


                #8
                I saw in a documentary on TV and read in a couple of places that the Lyme disease bacteria can be the trigger for MS the same way a virus can be the trigger. And I read that what might appear to be chronic Lyme disease or MS later might be a second infection of Lyme disease in the same person instead. That Lyme is a tricky little bugger.

                Comment


                  #9
                  Like many other things, there are a lot of things nobody knows about and we're still learning. Thought I had been through the worst. Actually I think I surprised the doc when I was delighted he said Lyme. I was thinking--well that's better than MS! But then, on the way home it started to sink in what he said. He said that Lyme attacks any weak link in your body and goes after weak genes first and can weaken your immune system. I already had a positive test for a movement disorder gene and have periods of 5-12 hours of voluntary muscle paralysis since all this began. Has anyone else here had a problem like that? I'm just wondering if that's part of MS. Also, during this time had 1/2 my thyroid out and thyroid problems seem to genetically run in my family. So it started to sink in. UGH!! It was a neuro that originally put me on the meds for MS but a different doctor that dxd me (from tests) with Lyme. I guess I jumped the gun, thinking that it was either / or.

                  I really appreciate all the comments. It takes a lot to face reality but then again...when all this started there was a possibility that it was ALS. I still rather be alive.

                  Comment


                    #10
                    The doctor probably never had a patient that was actually glad to hear she had Lyme, but when this all started there was a possibility that it was Myasthenia Gravis or ALS. There were a few times I didn't think I was going to live. So when I heard Lyme, in my mind, I thought--not MS. At least it was treatable.

                    Everything just starting to get fuzzy clear and sinking in a little on the way home when I remembered him saying that Lyme goes for weak genes first and anything in the body that is weak, but I guess I still didn't get it. So hearing all of your replies--I'm getting it. I tested positive for a genetic movement disorder since all of this started. Five times I've lost voluntary control nearly fully for 5-12 hours at a time. Have any of you had this with MS?
                    I also had to have 1/2 my thyroid out and there seems to be a genetic thyroid disorder in my family--all the women have it.
                    Now I'm thinking--UGH. You are so right. It could be I had Lyme since a long time ago and it triggered MS. We traced the symptoms of Lyme back before the dx of MS. So hoping it's just Lyme.

                    Comment


                      #11
                      For some reason I thought this didn't go through and posted it twice
                      DUH

                      Comment


                        #12
                        Originally posted by Shiela View Post
                        For some reason I thought this didn't go through and posted it twice
                        DUH
                        Lol, I have done the same thing.

                        In any event thank God it isn't ALS!! That and Huntington's disease terrify me.
                        He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
                        Anonymous

                        Comment


                          #13
                          Thank you Jules A. I'm glad it's not that for you too.

                          Comment


                            #14
                            Sheila,
                            I DO hope you don't have both!
                            Live simply. Love generously. Care deeply. Speak kindly.

                            Comment


                              #15
                              The doctor who identified Lyme as a disease wrote a paper about MS and Lyme

                              He told me that untreated Lyme can trigger MS. I had Lyme for a year before I was diagnosed and then several years later was diagnosed with MS.
                              His name is Alan Steere and he was at Yale Medical at the time we saw him. (My husband was also diagnosed with Lyme at the same time. Neither of us had that red target like rash.)
                              "Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

                              Currently on rituxan

                              Comment

                              Working...
                              X