I am so sorry to reading all of your stories!!!
This kind of pain is just horrible.
For some reason I keep trying to come down from the gabapentin (I think I just refuse to accept that I need to be taking meds four times a day, permanently.) but the intense pain and accompanying migraine just comes back with a lag time of a day or two. And then I remember why I need the drugs.
It is awful.
just awful.
Sometimes like a shock, sometimes like a knife and sometimes like a knitting needle is stuck in my face or ear. (and this is with meds, between doses)
I live in fear it will a)never go away b) get much worse. Both are very real possibilities.
How does everybody else deal with this disease?!?!?
(I'm not dealing well, I am afraid. I am often sad and feel isolated and hopeless. I keep myself cheerful and positive for my children and my job, but I think if things get worse I might need some extra support from a therapist or something. I just feel awful having to always take drugs just to live halfway normally....)
Dawn, let me know what the Lyrica is like, ok?
mommyRN tell me what the doctor has in store for you.
@seal
Holy moly!
Your eye was "stuck"?!?! For months?!?!
Ick. big ick.
This kind of pain is just horrible.
For some reason I keep trying to come down from the gabapentin (I think I just refuse to accept that I need to be taking meds four times a day, permanently.) but the intense pain and accompanying migraine just comes back with a lag time of a day or two. And then I remember why I need the drugs.
It is awful.
just awful.
Sometimes like a shock, sometimes like a knife and sometimes like a knitting needle is stuck in my face or ear. (and this is with meds, between doses)
I live in fear it will a)never go away b) get much worse. Both are very real possibilities.
How does everybody else deal with this disease?!?!?
(I'm not dealing well, I am afraid. I am often sad and feel isolated and hopeless. I keep myself cheerful and positive for my children and my job, but I think if things get worse I might need some extra support from a therapist or something. I just feel awful having to always take drugs just to live halfway normally....)
Dawn, let me know what the Lyrica is like, ok?
mommyRN tell me what the doctor has in store for you.
@seal
The headaches started about 1 year after my right eye ball got "stuck" in the upper right hand corner of my eye. At that time, I saw Neuro and Opthamologist and was in the hospital for 3 days (it took 6 months for my eye to correct itself, I'm thinking this was my first MS flare).
Your eye was "stuck"?!?! For months?!?!
Ick. big ick.
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