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What a two weeks! (newbie)

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    What a two weeks! (newbie)

    Hi All,

    I was on the fence about posting anything, but thought my story could be helpful to others. Three years ago I developed a foot drop that came and went in a few days. It was around the time I was under a lot of stress and started running on a treadmill. The doctors did a MRI of the knee and an EMG (both OK). They said they are not sure why the nerve stopped working for a bit and it is probably a back problem or pinched nerve. The weakness in the left foot comes back when I run a lot.

    Fast forward 3 years. I went in for a checkup. Physically I feel good. I get some very slight numbness or tightness that comes and goes on the left side of my body (including face), especially when I am stressed. I attribute it to my bad posture and the fact I sleep mostly on my left side. I told the doctor all this and about my foot drop that came and went. She did a neuro exam that looked good. She ordered an MRI of the head and spine. They found two "probable" lesions on the cervical spine and some in the brain (my jaw dropped when she mentioned MS). She says it is suggestive of MS not clinical.

    I will see a neuro next week.

    Thoughts?

    P.S. I've learned alot about this condition over the last two weeks. I pray for everyone who is living with it. I made a donation already to the MS Society.

    #2
    A diagnosis is both a relief and a disappointment in many ways. I hope you do not have it but if you do; I hope it is mild and manageable.

    The more you learn, the more there is to learn with this disease. I guess my only suggestion is one that many have heard me preach a million times before: create your own personal health file to track your symptoms, medications and treatments. many people spend years in limbo before finding a diagnosis and the health file keeps everything much easier and quicker for the doctors to figure out. I even keep cd copies of my MRI's for any future doctors need to see and copies of reports.

    best wishes and hugs at this time.
    Hope for the best, prepare for the worst and that way you have all your bases covered.

    Comment


      #3
      Originally posted by foxz71 View Post
      A diagnosis is both a relief and a disappointment in many ways. I hope you do not have it but if you do; I hope it is mild and manageable.

      The more you learn, the more there is to learn with this disease. I guess my only suggestion is one that many have heard me preach a million times before: create your own personal health file to track your symptoms, medications and treatments. many people spend years in limbo before finding a diagnosis and the health file keeps everything much easier and quicker for the doctors to figure out. I even keep cd copies of my MRI's for any future doctors need to see and copies of reports.

      best wishes and hugs at this time.
      Thanks. I'm 30 and feel good. I almost declined to get the head MRI when my internist suggested it cause my body feels good. I was shocked that they found anything, but not all tests come out perfect. Plus MRIs are not perfect when it comes to white spots.

      Comment


        #4
        Any more comments on my case by people? I was wondering if the foot drop was even an attack since it was brought on by running and went away fast. I have not had any other major problems since (thank god).

        Comment


          #5
          WELCOME GHEALTH!!!!!!!!! glad you found us! a friend of mine had four suspicious spots that turned up on an mri. he also complained of weakness in his leg. that was 15 years ago annd they have never been seen again! i hope yours turn out to be the same. the dr said it was a shadow effect, i've never heard of anything like it.
          hunterd/HuntOP/Dave
          volunteer
          MS World
          hunterd@msworld.org
          PPMS DX 2001

          "ADAPT AND OVERCOME" - MY COUSIN

          Comment


            #6
            Welcome to MS World and glad you came ..you'll find lots of info, experiences and much support!!

            Cannot address the footdrop issue, but others will I bet.

            Just wanted to say that every MS case, if that is what you do have, is unique with some similarities. I call it the disease with surprises!! Some are good too.

            What I mean is that you can present with symptoms, acutely or ones that majorly interfere with daily activities, like fatigue, pain, numbness etc. AND then it can all go away!!

            So be prepared, well informed and keep track of your symptoms, frequency and duration. You WILL get through whatever this is going on..and we'll be here for you on our journey ok hon?

            Hugs and hang in there; post as much as you need to ok?
            Jan
            I believe in miracles~!
            2004 Benign MS 2008 NOT MS
            Finally DX: RR MS 02.24.10

            Comment


              #7
              Originally posted by mjan View Post
              Welcome to MS World and glad you came ..you'll find lots of info, experiences and much support!!

              Cannot address the footdrop issue, but others will I bet.

              Just wanted to say that every MS case, if that is what you do have, is unique with some similarities. I call it the disease with surprises!! Some are good too.

              What I mean is that you can present with symptoms, acutely or ones that majorly interfere with daily activities, like fatigue, pain, numbness etc. AND then it can all go away!!

              So be prepared, well informed and keep track of your symptoms, frequency and duration. You WILL get through whatever this is going on..and we'll be here for you on our journey ok hon?

              Hugs and hang in there; post as much as you need to ok?
              Jan
              Thank you for the very kind post. I will pray for all of you and people with other illnesses.

              Comment


                #8
                Well it is all over for now. I saw my neuro earlier today (Dr. Dina Jacobs who was awesome). I definitely don't have MS based on the MRIs and neurological exam. The two spots on the brain MRI are tiny and the radiologists may have flag it to be very cautious. The spine lesions may not be there at all.

                We decided to do a EVP test just in case, but I might cancel it. Otherwise, she said to do another MRI in 6-12 months to see if anything changes.

                Thank you all for your posts and sharing your knowledge on this board. It helped me out alot over the last two weeks. I pray for all of you to be healthy and happy. Hopefully the cure for this disease is around the corner.

                Comment


                  #9
                  Well glad you like this neuro, but is she a MS one?

                  And.. for some of us, we are in limboland for quite awhile so there is a thread on here called LIMBOLAND checkin. i would recommend it.

                  I do not know for sure, but do not think its the SIZE of the lesion as much as the location. AND you might just be monitored for awhile. I was monitored by a renown MS neuro who said he never rules out MS and thought I had a "mild" or benign case. THEN when I had to transfer out of his clinic due to ins/job change, he told me NO, you do not have MS. However, he did acknowledged something was going on neurologically.

                  Few years later, another (actually 3 docs) all thought MS was a possibility. Same old results on MRI.. till 6 weeks later FINALLY, the classic MS lesions showed.

                  You just never know..If you can afford it, have the test done. Have you had an LP? Keep a log of your signs and symptoms too.

                  Stay with us here.. we'll get you through the unknown journey~

                  Hugs, Jan
                  I believe in miracles~!
                  2004 Benign MS 2008 NOT MS
                  Finally DX: RR MS 02.24.10

                  Comment


                    #10
                    Thanks for your reply mjan. She is an MS specialist. We did not speak much about location. She thought that some of the marks may not have been noted on the report if the radiologist wasn't trying to look for a problem (the test was for MS).

                    I will probably do the EVP, but I am in no rush. She mentioned the LP test if anything odd happens. She also mentioned to just do nothing for now and have another MRI 6-12 months from now.

                    Comment

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