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jhj52

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    jhj52

    I am 58 diagnosed ms after many tests. Doc says I am in remission do nothing unless I have a relapse, friends(esp 2 that has MS) think that is nuts. Tell me I should be doing something, taking something so I don't have a flare up.
    Anyone have any input?I would appreciate it...

    #2
    Your doctor sounds like one of the doctors that likes to wait until you experience a "flare" they can see and show via a MRI to put you on meds...some people have to wait for a second "flare" for the dx.

    Did they talk to you about MS meds?

    At the end of the day, I think it should come down to a personal decision whether you choose to take any meds or not. Some folks choose not to take any or decide after many years they are done with them. I think it's a little odd to dx someone with something and then not want to offer available treatment options, but that is my non-doctor opinion
    dxd RRMS 7/2011 - Rebif 8/2011 - Tecfidera 7/2013

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      #3
      " Prompt diagnosis allows early intervention with disease-modifying agents which can reduce the frequency and severity of exacerbations, slow the accumulation of MRI lesion burden, and delay the development of disability.
      http://www.friendswithms.com /early_diagnosis_and_intervention.htm
      "there is evidence substantiated by MRI and pathologic analysis that MS causes axonal damage even when there are no clinical"
      http://www.friendswithms.com /early_diagnosis_and_intervention.htm

      Other information that might be helpful:
      http://www.mscenter.org/images/stori...er09lowres.pdf

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        #4
        The pp's have touched on what I would say; I would do your own research (the links from pp sound like a great place to start), weigh the risks and benefits, and decide if you'd like to be on a DMD.
        2001: 1st 2 relapses, "probable MS." 2007: 3rd relapse. Dx of RRMS confirmed by MS specialist. Started Cpx. (Off Cpx Feb 08-Mar 09 to start a family; twins!) Dec '09: Started Beta. Oct '13: Started Tecfidera. May '15: Considering Gilenya.

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