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Ugh, the fatigue has hit me

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    Ugh, the fatigue has hit me

    I remember in a video my first MS specialist gave me about MS symptoms, they talked about how MS fatigue is different from "regular" fatigue, that you hit a wall and just can't push through ... I now know what they are talking about. Wow. This is about my fifth new symptom in the past month.

    For those of you who have dealt with/are dealing with MS-related fatigue ... does it tend to come and go? Once it hit, did it stick around? How do you cope with it? Is there a way to treat it? I'm a SAHM to two active little boys and right now even just the prospect of vacuuming a room or folding the mountain of clean laundry staring at me makes me want to cry.
    2001: 1st 2 relapses, "probable MS." 2007: 3rd relapse. Dx of RRMS confirmed by MS specialist. Started Cpx. (Off Cpx Feb 08-Mar 09 to start a family; twins!) Dec '09: Started Beta. Oct '13: Started Tecfidera. May '15: Considering Gilenya.

    #2
    I have it. It comes and goes. I also seem to "nest" a little bit before I crash really hard, so I kind of know when the worst is going to hit. But yeah, I know the feeling! I have a 26 month old little girl, and on those bad days I have to find somebody to come pick her up because I'm so weak I can't even get the dang tabs on her diaper un-done. Let alone lift her up into the highchair or make her food. Ugh.

    I feel for you!! The best thing I did was start to keep a super detailed journal/blog about every single symptom and when it comes and goes. After only a few weeks I was able to pin point my "warning" signs. A majority of it still comes and goes out of the blue but as each day goes on I get more of a hint about what's going to happen next. Hang in there! The fatigue doesn't last FOREVER you will eventually get another decent day. That was my fear, that I would NEVER be able to lift myself again. But I've actually had about 4 good days in a row, so I'm just waiting for the crash again.

    Hang in there!!!
    Diagnosed Aug. 2011 - Currently on Tysabri

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      #3
      MS fatigue is one of the most common symptoms and one of the most difficult to treat. I would suggest you start with looking at your routine and make sure you're getting enough rest, that you're eating healthy and drinking plenty of water. Avoid caffeine and energy drinks as they only cause rebound.
      There are supplements and medications which are effective for some patients. Ask your physician.

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        #4
        Have you noticed the fatigue gets worse with heat/cold? I have more trouble when it's hot and humid than I do when it is cooler.
        I went to a vegan diet because I did notice that after eating dairy or animal protein I had more severe reactions to heat and cold. I have more energy when it is there than I did before and the plus of losing weight all have me convinced that a Vegan diet (done correctly) has it's benefits.

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          #5
          I haven't noticed any patterns yet since it's only been going on since last week but I'll look for patterns. Thank you so much for the responses!
          2001: 1st 2 relapses, "probable MS." 2007: 3rd relapse. Dx of RRMS confirmed by MS specialist. Started Cpx. (Off Cpx Feb 08-Mar 09 to start a family; twins!) Dec '09: Started Beta. Oct '13: Started Tecfidera. May '15: Considering Gilenya.

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            #6
            I'm undiagnosed, but have been dealing with severe fatigue for 9 years. Sometimes I have had to stay in bed for days at a time. A tough thing to do with four children.

            Go to bed earlier than you have been. Take naps when they take naps. When my kids were little, they had to take a rest time even if they didn't want to sleep. They had to be quiet in their rooms for an hour. They could play as long as it was quiet.

            You might want to try B12. Even if you aren't deficient, it might help in a small way to raise it a little.

            Every once in a while, send the little ones to spend a couple of days at grandma's if that is possible.

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              #7
              I get the Fatiuge so bad I feel like I'll fall asleep just going to potty.

              When mine comes on it just comes out of the blue and stays awhile. I've tried different meds but they haven't helped. So, I sort of just go with the flow and sleep my days away waiting for it to end... Which it does.

              (oh and heat does make it come on and makes it much much worse for me)
              Dx MS Aug 2010 (after 2 years of searching)
              Started Copaxone Aug. 2010

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