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RADIOLOGY REPORT

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    RADIOLOGY REPORT

    I'M A LIMBOER: 8/07

    I HAD AN MRI LAST THURSDAY, BRAIN, C AND T. I HAVE AN APPT WITH MY MS SPECIALIST ON THE 18TH. SO I PICKED UP THE RADIOLOGY REPORT YESTERDAY.

    C AND T WERE BOTH "UNREMARKABLE" LOVED THAT TERM. FIRST TIME I'VE EVER BEEN HAPPY TO BE UNREMARKABLE!

    WRITING THIS FROM MEMORY SO BARE WITH ME.

    PREVIOUS MRI WAS JUNE 2009
    NEW MRI (LAST WEEK) SAID:
    THE BRAIN MRI SUMMARY: SEVERAL NEW LESIONS IN THE PONS AREA. WHAT???

    2 PREVIOUS LESIONS WERE LARGER NONE WERE ?ENHANCED?

    ALSO PUNCTUATE LESIONS FOUND?

    SO OBVIOUSLY MORE HAS GONE ON SINCE 2009. BUT THE SUMMARY SOUNDED LIKE THERE WAS NOTHING ENHANCED OR APPARENT (I THINK). IT SAID MS CHARACTERISTICS, BUT TO NOT DISCOUNT MIGRAINE, HYPERTENTION, VASCULAR SOMETHING OR ANOTHER.

    SINCE MY APPT IN 2010 AND THE ONE SEPT 2011 HE SAID MY STRENGTH ON RIGHT SIDE IS WEAKENED, BALANCE IS NOW OFF.

    WHEN I FIRST READ THE REPORT I WAS PRETTY EXCITED THINKING NO MS! I'M JUST SERIOUSLY CRAZY. AFTER REREADING IT MULTIPLE TIMES I'M WONDERING IF RADIOLOGIST WOULD SAY "LIKELY MS" OR JUST GENERAL DATA AS ABOVE.

    FROM YOUR EXPERIENCE WHAT ARE YOUR THOUGHTS? I REALIZE IT IS ONLY YOUR OPINION.

    OH DOES NOT ENHANCED MEAN NOT ACTIVE? IS THERE A DIFFERENT DX IF THEY ARE ACTIVE OR NOT?

    THE 18TH SEEMS SO FAR AWAY!

    THANK YOU, RENEE

    #2
    Hi Renee. Sounds like you're getting closer to getting out of limbo. Hang in there. I think they have to combine the MRI results with your clinical symptoms to make a determination. I can't comment on how the radiologists word their reports.

    The 18th is a long way off. Sounds like a good time for some baking, knitting, or fall decorating.

    Best wishes. J
    I do not have MS. I have Whatchamacallit; and all of the symptoms are mirages.

    Comment


      #3
      I could see the look on the face of the fellow doing my first MRI through the window. I knew I had MS.
      I was given the bad news by my neurologist that night.
      The whole diagnostic process took two weeks. (I'd had numb legs a year before, didn't really worry. Couldn't ignore double vision the next year, though.)
      At least it was over and done with. How people put up with trip after trip to neurologists, and no answers, I do not know.
      I have never looked at my various MRI pictures since, so I don't really know what the lesions looked like then, or what they look like now.
      Apparently not much difference, according to the neurologist, and I am much worse now than I was then, symptom-wise.
      From what I've read, lesion location matters more than the number of lesions.

      I'm happy to look at the scans of the platinum coils plugging up my aneurysm, on the other hand.

      Comment


        #4
        Originally posted by Thinkimjob View Post
        I could see the look on the face of the fellow doing my first MRI through the window. I knew I had MS.
        It's been a long time since my initial diagnosis, but I do remember the staffers in the radiology department and their half-smiles and stand-offishness after my first MRI. I kind of felt like just telling the, "hey, I already know, don't sweat it". There was no other explanation for what I had been experiencing. My mother, 3 cousins, and even my sister-in-law, coincidentally, all have M.S. The actual MRI/Diagnosis was just a formality. All those white blobs on my brain were no shock to me, but I can see how it would be an awkard situation for the technicians. Interesting you brought this up and wonder how many other people have noticed this phenomena. Body language is SO revealing.
        Tawanda
        ___________________________________________
        Diagnosed with Multiple Sclerosis 2004; First sign of trouble: 1994

        Comment


          #5
          Weird, isn't it. My first response was like yours Tawanda, I wanted to say, 'it's all right, I know, don't worry'. I actually told the neurologist how sorry I was that she had to give me bad news. 'This must be so hard for you,' I said.
          That's probably the standard response. Stops them talking, stops it being a reality for a little longer.
          Ah well.

          Comment


            #6
            Did your radiologist actually tell you, or do you mean just the look on their face and body expressions told you? My understand is the MS specialist will tell me a definite yes / no / maybe

            Comment


              #7
              Originally posted by RenInKy View Post
              Did your radiologist actually tell you, or do you mean just the look on their face and body expressions told you?
              Neither the tech nor radiologist can disclose MRI results, it is up to your Neurologist to give you the results.

              My neuro never gave any indication as to what he thought was going on with me, he simply sent me for testing. My husband was in the MRI room with me and while I was in the tube the tech mentioned MS to my husband.

              Neither of us had ever heard of MS and we were rather shocked. BTW - my MRI was clear. I mentioned, at my next appointment what the tech had said. My neuro was quite ticked off the tech said anything about MS to us, he was not supposed to. My neuro did admit, yes, he was looking at MS as a reason for my symptoms.

              Several years ago I went in for MRIs and the tech didn't even come into the room, his assistant handled everything. When it came time to switch from brain to c-spine MRI it was again the assistant who came in to handle switching.

              After the c-spine MRI the assistant and the tech both came in. The tech had a very concerned look and gently helped me up. All I could think was -- holy crap! The kid glove treatment freaked me out for a moment

              I already knew the c-spine would not look good because my neuro had told me years ago the disease was affecting the spinal cord.

              I guess what I'm trying to say is sometimes the tech doesn't have to say anything but body language can say alot...they are only human
              Diagnosed 1984
              “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

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                #8
                No, the poor old radiologist can't / won't tell you one way or the other. Not allowed. I could tell by the look on his face the result was not good.

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