Originally posted by Shashi
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The "shivery feelings" and smells are definitely signs of simple partial seizures but not necessarily Epilepsy..but you do not know.
So, my suggestion is to go the EEG route with an experienced Epileptologist so other neuros will not dismiss this whenever the EEG may be "normal"..
Definitely need a video EEG at home or in hosp. Then they can SEE what you go through..and look at EEG to document this.
Do not worry as much about the 20%..you can get on payment plans for this to cover 12 months. AND once you pay your out of pocket expenses fully (which you will probably meet, depending on the amt) it pays 100%
How much do you want to know the answer from a provider? And mostly likely, unless every test (EEGs) result in negative, normal, you will be given anti seizure meds. They help with other things besides seizure activity as you know. But honestly.. how do you feel about going through testing, follow ups and meds?
BTW.. I did something last night. As my nightly tremors started..I opened my eyes just slightly. You know you can see specks or lines from your eyelid? Well I just peaked slightly and could see all those lines shaking. When I open my eyes and lift my head it all stops. BUT..as soon as I lay on my side it all starts up again..as I fall asleep. I am just used to it.
Jan
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