Can you feel your eyes jumping around when you have nystagmus?
I'm not having it now, but at the beginning of this flare (which I think is finally ending, except for the drifting-off-to-sleep seizure-thingies), I could feel my eyes jumping around, especially when I had my eyes closed. It wasn't my eyelids twitching, which they do too at times, but it was my actual eyes that were bouncing around. I've had this happen a couple of other times over the last five years; but it's never happening when I go see my doctor, so it's never been diagnosed or documented.
Just wondering if you can actually feel it when it happens.
Thanks,
Lisa
I'm not having it now, but at the beginning of this flare (which I think is finally ending, except for the drifting-off-to-sleep seizure-thingies), I could feel my eyes jumping around, especially when I had my eyes closed. It wasn't my eyelids twitching, which they do too at times, but it was my actual eyes that were bouncing around. I've had this happen a couple of other times over the last five years; but it's never happening when I go see my doctor, so it's never been diagnosed or documented.
Just wondering if you can actually feel it when it happens.
Thanks,
Lisa
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