Ellen and Brett Wietecha
"BUT YOU STILL LOOK SO WELL...": LIVING WITH MULTIPLE SCLEROSIS
(2005) 84 minutes
Ordering information below
Produced/Directed/Edited by Audrey Geyer and Kevin Lindenmuth
Executive Producers: Carl & Holly Geyer
Reviewed by LizOP
MSWorld Book Reviewer
I recommend this film for purchase by MS Support Groups and local MS Chapters to have in their library.
Many of us have heard these very words or similar phrases that we look too well to be sick or have MS! Sometimes it comes off as dismissive and an unbelief that we are ill with a chronic disease. Sometimes I say, "Well, it's all in my head I guess!"
Which is is - in our heads and spine, so it is invisible. This makes MS difficult for others to understand.
MSWorld gives people with MS and their families a connection to others who do understand. It is a breath of fresh air to not have to explain, explain, explain.
This film shows three people and their families and how they cope. It is real time - reality show with honesty.
Nick and Brett, children with a parent with MS talk about their feelings in a natural setting and unposed and unscripted.
The film is about real people with MS. This is Rose Jones Taylor.
Here is part of what the producers write:
"Multiple Sclerosis is a much overlooked and misunderstood illness. Yet, it is the most common serious neurological disorder amongst young adults. Unknown to many, only about 30 percent of those diagnosed become severely disabled by the disorder and require a wheelchair for mobility over time.
"It is the other 70 percent of the MS population, which this . . . documentary focuses upon. Those individuals who "look so well" to the outside world, yet may suffer from such "invisible" symptoms as pain, numbness, fatigue, depression, vision and cognitive problems.
"In 2001, our first MS documentary, "But You Look So Well..." was released. This program revisits the lives of three individuals with MS and their families who participated in that project. It reveals how these individuals and families have learned to cope and live with MS over time. The average period of diagnosis for participants is ten years. However, many suffered from symptoms for years before they were officially diagnosed.
. . .They also share what helps them to cope on a daily basis with this unpredictable disorder."
"What is MS?" and "MS Medications" are also important topics addressed in this program. Dr. Robert Lisak, MD, a Michigan neurologist, known internationally for his work with MS as well as a MS nurse specialist bring their professional expertise and knowledge to this project . . . Information, programs and services available through the National MS Society are also presented.
Sally with MS Support Group.
To order this film, contact AudreyGeyer@aol.com or http://www.geyerlindenmuth.com/stillms.shtml or
810-225-7796 or
Snail mail:
GL Productions
7900 State Street
Brighton, MI 48116
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