I have been having symptoms since January that include peripheral neuropathy, fatigue, dizziness and lack of reflexes below the knees. I was hospitalised then and diagnosed with Guillan Barre syndrome. The neuro I saw a month later was a bit dubious about this but adopted a "wait and see" attitude.
Shortly after the GBS diagnosis I noticed that my vision was slightly blurry in one eye and that I had problems with depth perception, i.e had the impression that the ground was further away than it really was. Two months later my vision became generally "disturbed" and I started seeing floaters and then black spots. After a couple of weeks of this I started having strong headaches and a stiff neck along with floaters in the other eye and numbness down one side. I occasionally see flashes in my peripheral vision. My eyes are slightly sore and bloodshot, one more than the other.
I was hospitalised again and the doctors told me I was suffering from migraines with aura. I have never had a migraine before and neither has anyone in my family. Triptans made no difference to the symptoms.
I am concerned that this may actually be misdiagnosed ON. My MRIs (done three months apart) show two brain lesions this could fit an MS diagnosis (Guillain Barre syndrome would not last so long and doesn't normally cause this kind of issue). I have made another appointment with my neuro but it won't be until the end of the month.
Does what I describe fit anyone's experience of ON?
Thanks!
Marie
Shortly after the GBS diagnosis I noticed that my vision was slightly blurry in one eye and that I had problems with depth perception, i.e had the impression that the ground was further away than it really was. Two months later my vision became generally "disturbed" and I started seeing floaters and then black spots. After a couple of weeks of this I started having strong headaches and a stiff neck along with floaters in the other eye and numbness down one side. I occasionally see flashes in my peripheral vision. My eyes are slightly sore and bloodshot, one more than the other.
I was hospitalised again and the doctors told me I was suffering from migraines with aura. I have never had a migraine before and neither has anyone in my family. Triptans made no difference to the symptoms.
I am concerned that this may actually be misdiagnosed ON. My MRIs (done three months apart) show two brain lesions this could fit an MS diagnosis (Guillain Barre syndrome would not last so long and doesn't normally cause this kind of issue). I have made another appointment with my neuro but it won't be until the end of the month.
Does what I describe fit anyone's experience of ON?
Thanks!
Marie
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