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Trying to get on Aubagio

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    Trying to get on Aubagio

    It's going on month 4 this time (had tried once before last year) to try to get Aubagio. Told it is being held up with my insurance: Medicare and Humana Part D and my doctor providing necessary extra paperwork to get authorization. It has been so frustrating! I feel like I need to be on something. But reading posts here, I'm not AT ALL looking forward to having bowel problems. I have been to a couple of dinner events put on by Aubagio but they never mentioned soft stool and diahera as a problem. That is not something I want to experience. Kinda glad now that this is being held up - hopefully something better will come along before the Aubagio people finally decide to let me have their drug.

    #2
    I have been on Aubagio for over a year now.

    First, I am on Medicare and Humana and the drug was approved but it did take some time.

    Second, though everyone is different, I have not had any bowel problems at all. I have no side effects except I had some hair thinning though not too bad. I don't know if it is a side effect but I have also lost 15 pounds since I started Aubagio.

    Last but not least, I had an MRI after the year on Aubagio and have no new lesions.

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      #3
      Glad I read your post. I was about ready to give up. I had just called Humana Specialty Drug to see what was the hold up and they said my dr. hasn't done the grievance and appeal yet (this is going on month 4 of trying to get it approved). And since looking at alot of posts and they were talking about bad bowel problems I wasn't really sure I was interested in taking it anymore. BUT since you said you didn't have that issue maybe I'll be spared that if I EVER GET ON IT. And maybe I'll get lucky and get the side effect of losing weight!!!
      Thanks for your post.

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        #4
        I sent in an appeal to Humana myself. I am not sure if my doctor did also I just know after I emailed it I was approved.

        Briefly, I said that I did NOT want to take a drug requiring injections. That the side effects of Aubagio were more easily tolerated than the interferon's and that it certainly wasn't the most expensive MS DMD.

        Anyway, if you end up trying it I hope it works out for you!

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          #5
          appeal

          What did you include in your appeal submission to them? I see the Aubagio drug rep tonight and I'll ask him for a form I can submit.

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            #6
            I told them that I was terrified of having to use needles for the rest of my life and that my doctor who was an MS specialist believed that Aubagio was the best medicine for me.

            I also said I was worried about the side effects of the interferons and the fact that many of those side effects required other medications to relieve them. Then I mentioned my fear of injection site reactions to Copaxone.

            Last, the cost of Aubagio was less than many of the options that Humana offered on their formulary.

            I hope that it works out for you but I have to wonder why they approve it for one person and make another jump through hoops. It doesn't seem fair.

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