Does anybody know if Copaxone and Avonex are still the only DMD's available to someone who is still considered as Clinically Isolated Syndrome? After 5 years on Copaxone I'm running out of sites and wonder if either of the oral meds can be prescribed for me.
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Wow! 5 years is a long time to be still in CIS! You would think they would diagnose you or not and take you off of DMTs all together. If the Copaxone is working and keeping you in CIS, then stay on it. People take it forever. You may want to ask about going to every other day. Its not FDA approved here, but they are looking at it. Either way you can discuss it with your neurologist.
Good luck.
LisaDisabled RN with MS for 14 years
SPMS EDSS 7.5 Wheelchair (but a racing one)
Tysabri -
I've been diagnosed with CIS, not MS (yet) and I am currently on Tecfidera. I'm not sure how, but insurance accepted it and I've been on it since August.
It's worth a try to have your neuro try if you'd prefer to be on one of the orals. Good luck!Comment
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I don't think any of the oral drugs have been approved for CIS.Comment
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