New to Copaxone

[CMK8]

Hi all. I was diagnosed with RRMS in June and after a lot of research decided to start on Copaxone. I had some not so common side effects. After about 5 days I started having flu-like symptoms, extreme fatigue and headaches. The nurse at Shared Solutions said that flu-like symptoms are not a normal side effect of Copaxone, in fact that is the one side effect it claims not to cause. After talking to my neurologist I am taking a week break from the injections. I will start again at every other day hoping that taking it slow will allow me to tolerate the symptoms. I am curious to know if anyone else has experienced these type of symptoms and if so did they go away after a period of time? Thanks for your feedback!

[karenwb2]

Hi, I am also pretty new to this. I started copaxone the end of May. It has been pretty easy for me. I did have the headache and some nose stuffiness but we finally said that it was sinus instead. I have had most of the site reaction stuff. But I do think that it is a great idea for you to try it every other day to see if you can work up to the everyday. Keep us posted on how things are going.

[CMK8]

Thanks for the reply Karen. It's difficult to put this all into perspective when I started out feeling well then feel awful when trying to treat or should I say prevent this disease from progressing. I'm sure a lot of it is going to be a mind game until I start to have some serious effects from the MS. I am glad to hear you are doing well on the Copaxone. We are all different and who knows how we will respond to these drugs.

[justacowgirl]

I have been on c for 3 years. Primarily site reactions only. You could check back on past threads for flu like symptoms; don't recall any...

J

[PositiveMS]

Good experience with Copaxone

Hi, I just wanted to offer my own experience with Copaxone. I know everyone will have their own experience, but maybe mine can be helpful to you. I started Copaxone last September, 2012. In all the months since, I have not had any side effects at all, barely even injection site lumps. It was only in the first month that I noticed anything different, and that was in the form of moments of ridiculous fatigue. Never have I felt so thoroughly exhausted! But then it levelled and I have been cruising ever since. My neuro did recommend I switch Tecfidera anyways but that is because I started my first ever relapse on Copaxone a few weeks ago. I know some people that have never relapsed on Copaxone. I guess I was not one of those. Anyway, I hope it is smooth sailing for you!