Morbid-dr.kevorkian

[Mynamegoeshere1]

Ive been trying to reach my new neuro for 4 days and cannot get a call back. I'm so miserable that as morbid as it sounds, I would not be opposed to visiting a Dr. Kevorkian type Dr. I'm off my DMD's to start Tysabri and each day gets worse. I now lay in bed all day unless I have to get out of bed to use the RR and even that I hold in until it's a gotta go right now situation because I hurt so bad. It feels like all of the muscles in my legs are being wrapped tightly with a coarse rope and tightened until it can't get tightened anymore, then a short period of relief and a repeat of he above. Aaim having extreme migraines, hurt too bad to even get something to eat. I'm sore all over, my joints ache all over and my right eye hurts behind it. I've never believed in suicide and would never do this to myself, but I finally have sympathy for people who sought his business. I also have nerve damage in my inner ear and they can't tell the extent without surgery and that is flared up right now too. I just want to give up!

[CGMoonbeam]

I'm so sorry. Have you tried calling your PCP? Your regular doctor may be able to help and to advocate for you. He/she may be able to prescribe something for the pain. Your doctors should work together if they don't already.

Hope you get the help you need. I understand the feelings that you have. Do you have family or friends who could stay with you and help you? I know it's tough sometimes to ask, but sometimes it's necessary.

Let us know how you are.

[Mynamegoeshere1]

My husband and I moved in with my parents when I was diagnosed since I can't drive anymore and would need help getting to appointments. I feel 85 and I'm 32. My husband knows how I feel, but my parents don't. They would get very paranoid as family members have attempted suicide in the past and have me committed. I PROMISE that I would never do that though. I just don't want to hurt.

[limbo-lifer.73]

Myname, sorry to hear what you're going thru. I agree w/
CG...If the Neuro won't call back, call your PCP! If he/she
craps out, go to the ER!

I hear the pain in your words. Doesn't sound like any sort
of life I'd consider hanging around for, either. I'm pro-choice
on the issue of suicide. Not advocating it....just that it's "on
the table" when the time comes.

That said, hang in there. You still have some resources to
go through! Use them! And, by all means, keep us posted
on how your doing!

Take special care of YOU!

ME

[Thinkimjob]

I'm sorry you've got so bad so fast. Hold out for the Tysabri. It scares me me silly, but maybe it will do a lot of good.
Euthanasia doctors don't impress me -too keen, too many women patients.
That said...

[sgrammied]

I know how you feel. REALLY. I have been like that since the Middle of March. I also had vision problems, balance problems worse than before, nausea and my fingers are involved too. Been to Dr. upped my Lyrica another 200. Been on super steroids. Still having trouble and days I can't walk. Last week end I was thinking the same as you. My IViG Nurse looked at me like I was stupid. She should have the pain we are having.
I wish you the very best. Please call your PCP and see what he can do. I will be thinking of you and saying a prayer.
Sandy

[Sequoia]

I'm not surprised that so many of Dr. Kevorkian's patients had MS. This disease can make you want to just give up, particularly when you have pain that isn't being treated urgently &/or adequately enough by your doctor(s).

Please hang in there, though. Hopefully it [U]will[/U] get better!

[Jules A]

As someone who has cared for many MS patients I can totally empathize with how MS can make life seem unbearable but please consider getting some support before doing something that is permanent.

Here is a hotline link for anyone that feels alone and suicidal. http://suicidehotlines.com/

I bet if you call your physician's office and tell them just how bad you are feeling they would respond. I hope you get some relief soon. Sending good vibes your way.

[DMG]

I'm so sorry for what your going through. Sounds to me that if it were me I'd be requesting meds for your legs. The rope tightening feeling would push anyone to the edge. I'm on the max I can be on just to get some sleep.

David

[Thomas Jackson]

I finally went to see my pcp when I just couldn't take the pain anymore. My neuro was surprised next time I seen him that I was on pain meds. You need to get some relief , explain to your pcp what you have told us. Best wishes to you.

[Toomnyhats]

Honey, I'm so sorry for what you're having to go through.

Call me if I can do anything for you, & that includes chatting or just sitting with you.

[CGMoonbeam]

On a related tangent, my PCP wanted me to have a mammo. When I didn't go, the nurse asked me why. I told her that I have MS, what difference does it make? It was not brought up again.

[Tawanda]

Originally Posted by CGMoonbeam

On a related tangent, my PCP wanted me to have a mammo. When I didn't go, the nurse asked me why. I told her that I have MS, what difference does it make? It was not brought up again.

We will probably get a lot of flack for this, but I totally agree with you. Just because I'm not suicidal does not mean I want prolong my natural life, either. My body, my choice.

[Thinkimjob]

I agree with you Tawanda, but I'm illogical about some things.
I have the perfect instant out sitting in my brain - a coiled aneurysm. If the coils suddenly stop working, then that's pretty much it for me.
Now, the last time they checked it, I actually cried because it was still going well. My mother and the interventional neuroradiologist thought they were tears of joy.
How wrong they were.
And yet, next week, I'm going to have the thing looked at again. Apparently they can insert a stent in there. And I'll have it done, if need be.
I'm not actually worried about the potential 7 hour surgery at all.
Or even if the thing bursts again.

I don't want to die, but I don't want to drag it out, but I don't want to die.

What I want is a bloody cure for MS.

[Tawanda]

Originally Posted by Thinkimjob

I agree with you Tawanda, but I'm illogical about some things.
I have the perfect instant out sitting in my brain - a coiled aneurysm. If the coils suddenly stop working, then that's pretty much it for me.
Now, the last time they checked it, I actually cried because it was still going well. My mother and the interventional neuroradiologist thought they were tears of joy.
How wrong they were.
And yet, next week, I'm going to have the thing looked at again. Apparently they can insert a stent in there. And I'll have it done, if need be.
I'm not actually worried about the potential 7 hour surgery at all.
Or even if the thing bursts again.

I don't want to die, but I don't want to drag it out, but I don't want to die.

What I want is a bloody cure for MS.

Amen to that! If we got that "bloody cure" I'd be beating down the door to my PCP and gynecologist for all those tests I've blown off...! Here's to that ,