Patients Helping Patients®
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| Teacher's Lounge A place for educators to share their questions, concerns, tips and teamwork in dealing with MS while working in educational settings. |
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#1
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When is it time to say 'enough'??
Hi all, I've been a member here for a long time, but haven't posted for quite a while.
I'm a full time high school Spanish teacher, 17 years. Dx in 2011. fatigue is by far my biggest problem, along with pain in my right side (the hug, maybe?) Lately I've been feeling The Brain Fog a lot--hard to concentrate for long periods, too much sensory input puts me on overload (yeah, 30 teenagers in a room will do that to ya), NO ability to multitask, etc. You all know the drill, I'm sure. Off and on for a couple of years, but lately all the time, I've wondered about cutting back to part-time, or going SSDI entirely. Problem with that is, I CAN do my job.....I simply can't do anything in addition. I come home at the end of the day and I'm worthless--lay on the couch, read/watch tv, play on computer, and that's about it, except I do take my dog for a short walk (about 10 minutes) every evening. My weekends are spent taking naps and grading the papers I didn't have the energy for during the week. During the summers, I actually have the energy to do stuff--take short vacations with my husband (also a teacher), work on the house some, I even take students on trips abroad. I guess my question is....how do you KNOW when it's time to cut back on work, or cut it entirely? We can't afford for me to simply quit all-out unless I go to disability. But I feel like, in my 'quest' to keep teaching, I'm missing out on life. ANY advice or insight welcome!!!
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Mom was right: life's NOT fair. What she never told me is that "fair" is often irrelevant.
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#2
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I'm not a teacher, but I'll offer my insight. I quit work when it got to the point of being dangerous to both myself and to my coworkers.
As far as the hug goes I won't be any help I've never had it myself. Good luck whatever you end up doing.
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hunterd/HuntOP Co Administrator message boards MS World "There is no normal, just life." Val Kilmer in Tombstone |
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#3
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Soy maestra también y recibí el diagnóstico en 2011 también. Para mí, parece que tengo la energía de cumplir las obligaciones durante el día escolar, pero muchas noches me quedo en el sofá. Tengo una propiedad grande que tengo que mantener sola. Lo que me da miedo es que a veces se me olvidan unas palabras en español. Mis estudiantes saben del MS y me encanta que me traten igual como antes. Vamos a tener un equipo de la escuela para un viaje en bici el otoño que viene. Mi escuela es privada y tiene un beneficio si no puedo ser maestra de español. No sé quién lo determine. Lee atentamente las reglas de tu beneficio antes de decir algo- quizás sea mejor que una abogada lo lea. Suerte, Temagami
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#4
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correction!
Dx in 2001, not '11. So I've been at this (teaching w/ MS) for a while now. My administration and my students know about the MS.
Temagami, mis alumnos tambien saben de mi condicion, es muy carinoso---algunos de ellos se preocupen por mi, por ejemplo si falto un dia, me preguntan cuando regreso si todo esta bien con mi MS. (Disculpa la falta de acentos, que no los puedo poner en esta computadora.) ![]()
__________________
Mom was right: life's NOT fair. What she never told me is that "fair" is often irrelevant.
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#5
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for me, the decision was easy. they Mgmt decided 1 wk after school that i was no longer in the budget. i'd been teaching from w/c for 2 yrs. funny thing was my job was posted in that day's paper
![]() totally humiliating! esp when i thought everything was going well. i, too, for many years prior came home w/ nothing left to give my family. my 2 teen girls divided up the cooking, wash, housework, etc. esp when i was on avonex, shot on fri, flu on sat., weak on sun, well enough to do school on mon. i hate the time i lost! my girls grew up fast and to some degree, i think they've never said or complained, resented my MS and their extra housework. is it possible to lessen your hours and still be financially ok? if i had to do it again, i might have taken that part time job 6 mos. before they fired me. don't know, won't second guess. did enjoy being home my baby's senior yr in college esp since she joined navy mo. after graduation. if it were me, family pow wow, pray and go with your gut decision after that. may God bless you and you decide! ![]()
__________________
"Nothing is impossible., the word itself says I'm possible" Audrey Hepburn |
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#6
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Thanks for the thoughts. In my case "family pow wow" is my husband & me....no kids. (that's at least one fewer complication in the matter) I love my dog but he doesn't get a vote here.
Although if he did I'm sure he'd vote for me to be home more. ![]() There's a chance dh will be moving to a different job by the end of the year, way better benefits & almost 2x the pay, so if that comes through, AND if it works out, then yeah, we could do it. Cutting back hours would probably work in another year or so once we have car & credit paid off. I just feel like I'm caught between "wanting to stick it out just for my pride" and "wanting to leave just out of fear." Harrumph.
__________________
Mom was right: life's NOT fair. What she never told me is that "fair" is often irrelevant.
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#7
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Oh and poohb3ar-----THAT STINKS!! I can't believe they did that to you!!!!!!
Did you sue them?? because if EVER I've heard of wrongful firing, it's that. So sorry!
__________________
Mom was right: life's NOT fair. What she never told me is that "fair" is often irrelevant.
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#8
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Poohbear, my mom was diagnosed with cancer when I was 16, so I had to help around the house. I wasn't always happy about having to do it, but I don't regret it at all. Unfortunately, I wasn't able to have children, so don't have the help. Make sure to express to your children how much you appreciate what they do. My dad dismisses what I did and pays no attention to me now. My mom died when I was 20. I hope I eased her suffering at least a little.
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#9
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Quote:
Quote:
My kids were pretty understanding of the sx that they noticed - I tell them that I have "a note from my doctor" and then we make a funny out of whatever happened. What they couldn't understand though was when I began calling them by the wrong name with more frequency - and not even the same wrong name, like a sibling's name. They would say "that's ok," but it's not ok! Sometimes they would also have to "gently remind" me that yes, I did tell someone they could go to the bathroom or look up something on the internet even though I had absolutely no recollection of having done that.... I remember that some of them began get concerned with that sx. These kinds of things were happening with more regularity and were harder to dismiss with a laugh by the end of the year. My mental fatigue though... oh boy! I only had 3 preps, but pretty much one of them would be doing "independent study" work because I had no mental/physical capacity to take them through a lesson, or explain their assignment to them. Fortunately (for me, not my kids), I don't teach a core subject so no one really checks on me to see what I'm doing, although I did fear a student's parent calling to check up on me. I guess all that to say, well, I don't know exactly what I'm saying! I suppose maybe just to vent my own frustrations, my own questions, my own fears of what's to come and when it will come and what I will do. Quote:
sherill |
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#10
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Fatigue and job change
I gave up on teaching 7 years ago when I had no idea why I was in so much pain and so exhausted all the time. I just got a CIS diagnosis after about 20 years of on and off symptoms of what I was told was fibromyalgia.
However, I found a job in education as a consultant. I get between one to two days at home each week to do paperwork and go on consults the rest of the time. The drive can get to be a problem when I have to get up early and come home late, but it's not as taxing as being in the classroom all day 5 days per week. Have you looked into teaching online? I am considering it as a backup. I see ads for online foreign language teachers with companies like K12 or Connections Academy all the time. |
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#11
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I taught online for two years about six years ago. It was a wonderful experience. And by now I'm sure the technology is even better. Computer speed at the time was my only problem. Teaching and relating to students from all over the US was interesting and gratifying. I stopped when I went into a different field but will return to it if/when MS symptoms make my current job too difficult.
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#12
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thanks for the support. it was still a blow to the ego, but in the long run i know it was for the best. sounds good about hubby's job. hang in there and follow your gut. it's hard to let go. your pride and love of teaching and what has been your life for a long time makes it hard. but you need to do what's best for you ![]() take care and may God bless ya through this! ![]()
__________________
"Nothing is impossible., the word itself says I'm possible" Audrey Hepburn |
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#13
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it's his loss that he's not in your life. my girls were/ are my life savers! i probably need to tell them that more often. i have and do tell them how much they mean to me and try not to let a day go by without reaching out to them (we're 13 driving hrs apart) but thanks for reminding me of what blessings i have. i pray that anyone else reading this realizes what blessings our children who end up caring for us emotionally & physically. let them and the others who help you know it. it's not easy for them either. God bless ya! ![]()
__________________
"Nothing is impossible., the word itself says I'm possible" Audrey Hepburn |
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