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General Questions and Answers For learning, sharing your experience, and exchanging information about Multiple Sclerosis. Please discuss medications in the Medications forum, and natural supplements in Tara's forum.

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  #1  
Old 04-02-2012, 07:50 PM
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SimpleGrace SimpleGrace is offline
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Vertigo vs dizziness vs balance problems

I saw an ENT today to rule out any ENT-related issues that might be causing my dizzy/vertigo/balance problems. He said there's no ENT reason for my problems. As expected.

At any rate, he also explained that "vertigo" is a spinning sensation accompanied by nausea and sometimes vomiting.

My neuro put vertigo on my referral form when he sent me to the ENT, but I have not had "spinning" or nausea.

What I do have is a sense of being off-balance when I walk or stand still. If you've ever been in an earthquake, it is a similar feeling. In addition to that, but a little different feeling, is when I am lying down, I'll have a sense that I'm moving. If I turn my head or eyes, I will feel a "whoosh" sense, like my senses take a minute to catch up with my focus. The ENT said those sensations are brain-centered, not ear-centered and not "vertigo."

So, do any of you have what he described as true "vertigo" with the spinning that doesn't stop and nausea? Or, is your dizziness more like my "earthquake," off-balance sensations?
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  #2  
Old 04-02-2012, 08:30 PM
Wellnesschic Wellnesschic is offline
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Quote:
Originally Posted by SimpleGrace View Post
I saw an ENT today to rule out any ENT-related issues that might be causing my dizzy/vertigo/balance problems. He said there's no ENT reason for my problems. As expected.

At any rate, he also explained that "vertigo" is a spinning sensation accompanied by nausea and sometimes vomiting.

My neuro put vertigo on my referral form when he sent me to the ENT, but I have not had "spinning" or nausea.

What I do have is a sense of being off-balance when I walk or stand still. If you've ever been in an earthquake, it is a similar feeling. In addition to that, but a little different feeling, is when I am lying down, I'll have a sense that I'm moving. If I turn my head or eyes, I will feel a "whoosh" sense, like my senses take a minute to catch up with my focus. The ENT said those sensations are brain-centered, not ear-centered and not "vertigo."

So, do any of you have what he described as true "vertigo" with the spinning that doesn't stop and nausea? Or, is your dizziness more like my "earthquake," off-balance sensations?
Maybe this will help you. i too have this "woosh" sense, and it is caused by lesions on my vestibular nerve in my brain stem. i also have some ocular motor issues as well, and it appears there maybe a lesion in this part of my brain stem as well. It really isn't vertigo, as it is more of this sense of moving. Mine is a tilting back and forth, like I am on a boat, yet nothing is really moving. I have been to vestibular rehabilitation and I recently went to a neuro opthomologist, who prescribed a prism for my glasses which has helped tremendously. I felt off balance for several months, and finally got the neuro optho. to listen, it was pure misery before that, however he said he sees a lot of this with MS. So, I don't have true "vertigo", don't spin or any of that, however my feelings of off balance were real, and it sounds like you believe yours are too. Don't give up pursuing an answer. I pushed from October until Feb., and because of this persistence got to an answer and a solution that has really helped. Doctors are experts in medicine, we are experts in our bodies and ourselves. Good luck to you!!!
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  #3  
Old 04-02-2012, 08:55 PM
Redwings Redwings is offline
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Hi Grace:
I've had the spinning sensation several times as a side effect of 3-day Solu-Medrol treatments. I've never had it any other time, and never had nausea along with it.

I've also had the "whoosh" sensation several times, but only when my menopausal hormones are out of whack. That's suggestive of it being a brain-centered phenomenon rather than ear centered. I'm theorizing that the same sensation is possible in demyelinating diseases when parts of a movement sensation reach the brain, or are processed by the brain, at slightly different times (milliseconds).

My balance is a little "off" since having a couple of spinal cord lesions. But it's never a feeling of movement or dizziness.

Do you have a brainstem lesion(s)? Brainstem lesions can affect the vestibular system without being an ear problem or vertigo. Hopefully your neuro can comment on this now that the ENT has ruled out an ear issue.

Your comparison to being in an earthquake brings one other thing to mind. What happens to your feeling of being off balance when you're in motion, like riding in a car, elevator or on an escalator? Does it get better, get worse, or stay about the same? If it gets better, one area to investigate is disembarkment syndrome ([I]mal de debarquement[/I]). Google it and see if any of it sounds familiar. Otherwise, what you're experiencing could very well be a brain-centered phenomenon, possibly caused by out-of-sync signals reaching your motion-processing centers at different times.

Whatever it is, I hope it clears up and you feel better soon.
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  #4  
Old 04-02-2012, 09:52 PM
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SimpleGrace SimpleGrace is offline
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I'm having a cervical/spinal MRI May 1, and then I will see my neuro again, so I will know more then. At this point, I have only had a head MRI, and it only showed punctate lesions in the frontal lobe. So, I am not even diagnosed with MS. Neuro says there is something central nervous system related, but he isn't saying what yet.

As for the motion thing, my off-balance issues actually get worse in elevators, but not in the car. It is really strange. I tend to think it is a disconnection between the movement and my brain processing the movement, too.

Nothing is ever simple, is it?
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  #5  
Old 04-03-2012, 10:26 AM
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Toomnyhats Toomnyhats is offline
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Quote:
Originally Posted by SimpleGrace View Post
If I turn my head or eyes, I will feel a "whoosh" sense, like my senses take a minute to catch up with my focus. The ENT said those sensations are brain-centered, not ear-centered and not "vertigo."

So, do any of you have what he described as true "vertigo" with the spinning that doesn't stop and nausea? Or, is your dizziness more like my "earthquake," off-balance sensations?
Excellent description of my foggy brain!

I have had both. When I had what your ENT described as "vertigo" (spinning room/nausea/vomiting) I was told it was an inner ear infection. Went away after about 3 days w/natural antibiotics & rest. it's happened 3X. I now question that dx b/c my chiro at time made it & I've since learned it is a MS sx (he missed several big sx when I was seeing him).

"Earthquake" off-balance is not an uncommon sx for me, almost daily. Elevators are not fun but I've not noticed it in cars.
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  #6  
Old 04-04-2012, 04:42 PM
meissie47 meissie47 is online now
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Quote:
Originally Posted by SimpleGrace View Post
I saw an ENT today to rule out any ENT-related issues that might be causing my dizzy/vertigo/balance problems. He said there's no ENT reason for my problems. As expected.

At any rate, he also explained that "vertigo" is a spinning sensation accompanied by nausea and sometimes vomiting.

My neuro put vertigo on my referral form when he sent me to the ENT, but I have not had "spinning" or nausea.

What I do have is a sense of being off-balance when I walk or stand still. If you've ever been in an earthquake, it is a similar

feeling. In addition to that, but a little different feeling, is when I am lying down, I'll have a sense that I'm moving. If I

turn my head or eyes, I will feel a "whoosh" sense, like my senses take a minute to catch up with my focus. The ENT said those sensations are brain-centered, not ear-centered and not "vertigo."

So, do any of you have what he described as true "vertigo" with the spinning that doesn't stop and nausea? Or, is your dizziness more like my "earthquake," off-balance sensations?
Oh my goodness SimpleGrace, I hate that your feeling this way but it was so good to see your post! I had these same symptoms in 2010 went meds for sinus infection, did nothing, then went to an ENT who had me do the balance test.

The findings where I had 50% damage to my left inner ear caused by some event they couldn't pinpoint. But my body had compensated for it or rather it had corrected itself.

By the way I was also dealing with hyperacusis which is a sensitivity to sound.Which I still deal with off and on especially when the barametric pressure drops.(weird I know) That lasted longer than the dizziness.

ENT said he could do nothing b/c it was neurological.

I have now been dealing with the same symptoms again for the last 2months had pcp order a brain MRI b/c my neuro wouldn't. (another story). findings were I had what they believed to be was sinus infection. treated with oral 4mg 5 day of steroids and antibiotics. Didn't help any.

When I described my dizziness to my neuro who is an MS specialist he said the symptoms were typical of CENTRAL VERTIGO. He also explained about the inner ear damage and the hyperacusis.

He said it had something to do with the Ms nerve damage that was connected somewherebetween the brain and ear it's been a while so I can't remember and am probally not saying it right.

Anyway I am now being treated with 3 day Solumedrol as I did in 2010. I had an MRI later and I had some activity going on so he put me on another 3day round. Hopefully I won't have to do that again.

I REALLY hope you get to feeling better and you get a true diagnosis.

Meissie
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  #7  
Old 04-06-2012, 08:46 PM
deb46 deb46 is offline
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I have the "earthquake" off balance almost everyday. I get worse in elevators, cars, in a rocking chair, in a swing etc. As a matter of fact that was what got me my MS diagnosis.

Have had this for almost 10 years. Some days it is worse than others. I have a lesion on my pons. I take meclizine for it and it helps.
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  #8  
Old 04-06-2012, 11:08 PM
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SimpleGrace SimpleGrace is offline
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I told my husband today that it is kind of like being on a waterbed with your eyes closed. I have this really bad when I'm lying down sometimes even! Weird!
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  #9  
Old 04-15-2012, 10:01 AM
SaneBabe SaneBabe is offline
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I just began having vertigo last night. Feels like I'm on a boat, okay when I sit still. (elevators have bothered me for years). Does this go away with most people, or is it something I have to adapt to? Read that Dramamine helps, so will try that.
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  #10  
Old 04-15-2012, 11:16 AM
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LisaL77 LisaL77 is offline
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Quote:
Originally Posted by SaneBabe View Post
I just began having vertigo last night. Feels like I'm on a boat, okay when I sit still. (elevators have bothered me for years). Does this go away with most people, or is it something I have to adapt to? Read that Dramamine helps, so will try that.
Me, too. Mine improved a little, though. When I spin around to fast is when I experience it most now.
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  #11  
Old 06-09-2012, 12:10 PM
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poohb3ar poohb3ar is offline
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me too

simple grace, you explained my vertigo exactly.
mine is not ENT related.
when neuro ran the 3 days of tests -the computer one with electrodes on your head and watching the screen - i almost fell out of the chair.
he dxd it as vertigo & MS but the vertigo he explained is neuro damage no cure. i take 5mg of diazepam 4x daily since 2002.

until this last relapse that has been enough to calm it so i can manage not too be so 'drunk' all the time. after 3 rounds of roids, last one being 4days of IV solumedrol it has gotten better. tho it likes to hit me without any warning so i've fallen a lot. numb legs don't help situation.

elevators are torture!!!!!!!!!!!!
i can finally go down our stair chair without holding on for dear life.

you're not alone on this merry go round. i got me one of those 'cloud pillows' because even with my ergonomic foam pillow, i felt like my head was rolling off the bed. my DH would find me on my stomach with fistfuls of mattress/ sheets. i felt like i was going off the bed! thank goodness that has eased up.
but i'm using the cloud pillow it cradles my head nicely and is cooler than the memory foam one.

i pray they find rx to help you. neuro told me lots of MSrs take diazepam 5 mg for vertigo. you might want to ask. it's helped me for 10 yrs.

hope you get a ticket off the merry go round!

God bless ya!
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  #12  
Old 06-09-2012, 01:34 PM
maggie123 maggie123 is offline
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Double vision accompanied

Yes, I experienced vertigo along with double vision. It was the strangest thing ever. Double vision is so weird. Initially I though my eyes were tired but I slowly began seeing double and feeling very dizzy. Well that was over a year ago, and I was put on my usual IV steroid treatment, and it went away.
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  #13  
Old 06-09-2012, 11:38 PM
gomer gomer is offline
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Vertigo? NO, but almost everything else.
Sometimes I have had the water bed sensation, for about a week a couple years ago, it was weird but relaxing at the same time. (gentile wave like)

While my vestibular issues vary a bit, its been better the past couple years. I had P/T for it a few years ago. One thing I was taught, was to move eyes first, before moving head in a direction.

Earthquake? never experienced one.

Boat, now that fits me, like walking on a moving boat yet I am on dry land.

I was sent to a ENT over 5 years ago. He had a brain MRI done, simply noted CNS issue (no dx) investigate if warranted. Two falls, both requiring surgery, in less than a year, I guess was not enough to investigate!

I have had diplopia since I was 18, had to start wearing glasses w/prisms after high school. I can go for years between prism changes, but it's hell till I get them updated.

One time while stationed in Albany Ga a glasses shop got my prisms wrong and I felt like the man walking at a wild angle in the veggie, talk about feeling drunk!


Gomer Sir Falls-a-lot
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  #14  
Old 06-10-2012, 09:38 AM
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jbell2435 jbell2435 is offline
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I've had all three now...

Just had true vertigo the end of March that sent me to the ER, spinning (clockwise), nausea, double vision. Neuro explained that there is a new lesion at the brain stem that affects the eye movements, thus the whoosh when you turn your head too fast or move your eyes it take a few seconds for them to "catch up" to your movement...

Prior to this I had what I thought was vertigo, movement laying down, etc. but believe that was related to inner ears.

The dizziness (drunk sailor or on a boat) feeling and off-balance issues were left after the 2004 'vertigo' went away, but improved with the Ampyra. I've not noticed it any worse in cars or elevators, but the true vertigo was, so I suspect that that is the eye movement issue with brain stem lesion.
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