How did i wind up here?

[msessy]

HI EVERYONE, MY NAME IS MSESSY

i HAVE BEEN DIAGNOSED WITH PPMS FOR ABOUT 7 YEARS.
IN 2009, MY SYMTOMS WORSENED, I WENT FROM A WALKER TO A WHEELCHAIR. CALLING CALLING ALL MS PEOPLE, WHO WOUND UP LIVING IN A NURSING HOME... HOW HAVE YOU MANAGED TO COPE? CAN WE USE THIS SITE TO REACH OUT TO OTHERS WHO ARE RESIDING IN NURSING HOMES, FOR ENCOURAGMENT AND TO ENCOURAGE EACH OTHER?
MSESSY

[Thomas Jackson]

I just wanted to say I really admire your attitude. MSer's are the only real help I get. Good Luck to you.

[msessy]

THANKS FOR RESPONDING. WE BASICALY NEED EACH OTHER FOR SUPPORT. LIVING WITH MS, IS DIFFICULT TASK, EXPECIALLY WHEN YOU ARE ALONE.

[foggyrose]

Just wanted to say Hi, msessey! I too use a wheelchair all the time but am still living in my home with my little dog. Have some outside help that comes in, but am hanging onto my independence as long as possible. All the best to you and take care.............

[anneth121]

IM 65 ALMOST 66 HOW. ALSO TYPING WITH LEFT HAND CAUSE RIGHT HAND WENT DEAD. ANYWAY, HAD PPMS FOR ABOUT 15 YEARS. DX IN 1999. HAD PPMS FROM THE START AND DIDNT GO ON ANY DISEASE DRUGS CAUSE KNEW IT WOULDNT HELP. STILL IN MY CONDO BUT HAVE MORNING HELP 3 DAYS A WEEK AND HAVE HELP TO GO TO BED EVERY NITE. HOME CARE COST ME $13,000 LAST YEAR (FOUND OUT WHEN I DID MY TAXES) STILL HAVE MY WHEELCHAIR ASSESSABLE VAN BUT CANT DRIVE. NEED IT FOR SCOOTER LIFT IN BACK AND OTHERS DRIVE ME. MOST TIMES I PAY SOMEONE TO DRIVE. GET MEALS ON WHEELS BUT PAY FOR IT. ONE OF MY CAREGIVER GOES TO SAFEWAY FOR ME FOR EXTRA FOOD STUFF. CANT COOK BUT CAN MICROWAVE IF DISH IS NOT TOO HEAVY.
CANT WALK BUT HAVE A SET OF PARALLEL BARS AND ATTEMPT TO SHUFFLE BACK AND FORTH SEVERAL TIMES. HAVE A HOVEROUND THAT INSURANCE PAID 9/10 OF. MY CORNERS ARE TOO SHARP TO USE MY SCOOTER. I HAVE NO MORTGAGE BUT OF COURSE MY CONDO WONT SELL WHAT I BOUGHT IT FOR. HAVE TAKEN SOME TOURS OF RETIREMENT JOINTS, BUT DONT KNOW IF I WILL HAVE ENOUGH MONEY TO STAY FOR THE REST OF MY LIFE, AND WHO KNOWS HOW LONG THAT WILL BE. PROBABLY HAVE TO GO INTO AN ASSISTED LIVING PLACE ANYWAY, AND HERE THEY ARE ABOUT $3000 A MONTH. BLAH, BLAH, BLAH. NO FAMILY CLOSE - SON LIVES IN TAIWAN! BEING ALONE AND OLD WITH MS STINKS.

[foggyrose]

Amen!!! "Being old and alone with MS sure stinks!"

[celeste]

Hi, Msessy,

I just wanted to send you a message of support.

I also have PPMS which is a misery I never could have imagined. So far I'm lucky enough to be semi-independent & have family to pick up the slack. Who knows what the future will bring?

Are there any services in your community that can help you? I have just started to look into some where I live to give my family a break. We have Meals on Wheels & a Senior & Disabled van service staffed by volunteers. There may be others where you live.

Being older, alone, & having MS are a triple whammy. Try to keep up your spirits.

Sending long distance hugs.

celeste

[novembergirl1950]

Hello Msessy ~ I have not been diagnosed yet, have all the symptoms. Going to see a new neurologist in two weeks.

I had to move to a senior residence that is semi-secure. Most of the people here are in their 80's and I am 61, huge generation gap. Loneliness is huge too. No one to talk to.

My family of origin abandoned me, so did my friends, afraid I would become a burden to them. Heck, I can't even get a ride to a church in my town. I no longer drive due to the dizziness. So, I am feeling pretty abandoned right now. The internet is my only outlet, so here we are. Glad you are reaching out :-)

Debbie

[msessy]

Originally Posted by foggyrose

Just wanted to say Hi, msessey! I too use a wheelchair all the time but am still living in my home with my little dog. Have some outside help that comes in, but am hanging onto my independence as long as possible. All the best to you and take care.............

DEAR FOGGY ROSE

WHAT I AM FINDING NOW IS THAT MY FRIENDS AND FAMILY, ARE CATCHING UP TO US, WITH THEIR OWN HEATH ISSUES SO WE CAN JUST BLEND RIGHT IN THERE.

[mjan]

Originally Posted by novembergirl1950

Hello Msessy ~ I have not been diagnosed yet, have all the symptoms. Going to see a new neurologist in two weeks.

I had to move to a senior residence that is semi-secure. Most of the people here are in their 80's and I am 61, huge generation gap. Loneliness is huge too. No one to talk to.

My family of origin abandoned me, so did my friends, afraid I would become a burden to them. Heck, I can't even get a ride to a church in my town. I no longer drive due to the dizziness. So, I am feeling pretty abandoned right now. The internet is my only outlet, so here we are. Glad you are reaching out :-)

Debbie

Just wanted to say HI and if you ever want to talk, you can find my email address on my profile here, okay? I am 63, widowed, live alone but am in process of looking for a roommate due to loss of income level.

I am sorry you are feeling abandoned too. Some folks I just don't understand how they treat folks.

Hugs, Jan