It appears that your MSWorld session has not been initiated or has expired. To renew your session, please click here, then click 'Logout' on the right hand side and log back in again.

Go Back   MSWorld Forums > MSWorld Message Boards > Medications & Treatments
Register FAQ Calendar Guidelines Mark Forums Read Login

Medications & Treatments For discussing medications and all treatment methods

Thread Tools Display Modes
Old 03-19-2012, 08:17 PM
Jcs Jcs is offline
Registered Member

Join Date: Mar 2010
Posts: 8
You folks are GREAT!!!!

Thanks to all of you I have a lot of my questions answered about BG12. It will make the staying on Beta alot easier when I can feel that there is hope for light at the end of the tunnel. Some day I will be able to quit putting needles in my body. To actually put a bathing suit on again and not be trying to hide the pink spots and bruses. If it does make it to us WONDERFUL, and if not like a lot of other things we have learned to treck along.
Reply With Quote
Old 03-20-2012, 04:04 AM
rdmc rdmc is offline
Registered Member

Join Date: Sep 2003
Location: FL
Posts: 2,211
Originally Posted by ckfazz View Post
No, my neuro was not involved with the clinicals and actually was kind of a moron. I did and do go to USF for the clinical trials and love the staff there as well as my neuros! When the trial and extension is over, I will continue to see them because I am so comfortable with them and they actually care about their patients
Do you see Dr. Krolcyk?
Reply With Quote
Old 03-26-2012, 09:34 PM
ckfazz ckfazz is offline
Registered Member

Join Date: Mar 2007
Location: Clearwater, FL
Posts: 8
Sorry for the delay in answering, things have been hectic around here lately. Yes, I see Dr. K and his staff over at USF and they are all simply fantastic. Its even nicer now that they moved down off of the 3rd floor and have their own area on the 1st floor
Reply With Quote
Old 04-05-2012, 07:20 PM
Jules24 Jules24 is offline
Registered Member

Join Date: Oct 2011
Posts: 12
How can I apply to take this under trial?
Reply With Quote
Old 05-04-2012, 01:39 PM
ckfazz ckfazz is offline
Registered Member

Join Date: Mar 2007
Location: Clearwater, FL
Posts: 8

Unfortunately, I do not think you can anymore as I believe the trials have been closed to new enrollment. THe drug has already gone for FDA approval and most of us are on the extension at this point. I'm sorry
Reply With Quote
Old 05-14-2013, 11:04 PM
momdad momdad is offline
Junior Member

Join Date: May 2013
Posts: 1
vision problem

Originally Posted by newbie but goodie View Post
Wow, it sounds like you are doing really well. That's great to hear! Thank you for sharing your experiences.

How has your ON been affected? I know you said the pain has lessened significantly, but have you regained any vision? I had a severe episode of ON in Sept and havent regained any of my vision, even after IV steroids and 2 months on Copaxone. It had stopped hurting like the dickens for a while but this week it's back to it's old tricks

The ON is the part of MS that scares me the most so I am desperate to find a way to improve my vision and prevent more vision loss.
i have been diagnose ms for 2 years now. i had numbness on my lower body and slightly vision problem. my neuro start me keppra bcuz i had full body seizure. i am on keppra for 2 years now. i am also taking copazone for almost a year now bcuz i was diagnose ms for my numbness and vision. my vision got worst for 6 months now. black spot in the middle of my eye develop. it's not better. i think you guys are right that copazone is not for vision problem but only prevent replase. i am also looking for something that can help my vision. appreciate if any of you guys can share information. thank you very much
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off

Forum Jump

All times are GMT -6. The time now is 12:20 AM.