I've had RR since at least 1993, however after reviewing my medical history my last neurologist (Cleveland Clinic) felt that I've probably had it since my late 20's (pre MRI days).
I've gone thru the ABC's, Tysabri was great until I developed anaphylaxis to it in August of 2011. Tongue, lips swelled, had difficulty breathing, so they took me off that and I was started on Gilenya last Thursday.
Not been feeling too good since then - I've been tired, achey, sick to my stomach. I've adjusted the time I take my dose, (since I have to keep my job to pay for my insurance!) to just before I go to bed - but for the past three nights I develop severe stiffness on the right side of my neck and up in to my scalp about 20 minutes after taking it. Was so severe last night that I didn't sleep much and while my heart rate remained steady at about 55 I had blood pressures ranging between 189/103 to 223/113. My lowest BP was when I got up this morning - at 148/99.
I'm at work - called my neuro's office this morning and still not heard a word yet - head ache/neck stiffness is still with me, along with the nausea and lethargy. I've not read about any BP increases so far, so wondering if I'm just different (and if and when I'm going to stroke).
I'm trying to give this stuff a chance, but so far have not been impressed - are these just things I'm going to need to get used to?????
I've gone thru the ABC's, Tysabri was great until I developed anaphylaxis to it in August of 2011. Tongue, lips swelled, had difficulty breathing, so they took me off that and I was started on Gilenya last Thursday.
Not been feeling too good since then - I've been tired, achey, sick to my stomach. I've adjusted the time I take my dose, (since I have to keep my job to pay for my insurance!) to just before I go to bed - but for the past three nights I develop severe stiffness on the right side of my neck and up in to my scalp about 20 minutes after taking it. Was so severe last night that I didn't sleep much and while my heart rate remained steady at about 55 I had blood pressures ranging between 189/103 to 223/113. My lowest BP was when I got up this morning - at 148/99.
I'm at work - called my neuro's office this morning and still not heard a word yet - head ache/neck stiffness is still with me, along with the nausea and lethargy. I've not read about any BP increases so far, so wondering if I'm just different (and if and when I'm going to stroke).
I'm trying to give this stuff a chance, but so far have not been impressed - are these just things I'm going to need to get used to?????
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