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General Questions and Answers For learning, sharing your experience, and exchanging information about Multiple Sclerosis. Please discuss medications in the Medications forum, and natural supplements in Tara's forum.

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  #1  
Old 02-08-2012, 02:17 PM
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jbell2435 jbell2435 is offline
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Question Anyone else have muscle atrophy?

Well, I went to the PT this morning and told him my DH had noticed that my r thigh seemed smaller than the left, so he measured thigh and calf...

Sure enough, over 1/2" smaller thigh and even more on the calf, so he said atrophy.

He said we can work on it, but I was trying to read about that when it is caused by MS and wasn't sure if it can be fixed.

My question is, has anyone been through this and were you able to correct it through rehab and/or exercise.

It's really a bummer as they said no atrophy in Sept. 2011...but now it is there.

Could the AFO contribute to the calf muscle atrophy??

Thanks.
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Old 02-09-2012, 09:18 AM
gomer gomer is offline
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I wear AFOs on both feet. I have not noticed any difference, have not looked either, nor have I been in any type of P/T in several years.

DO you wear AFOs on BOTH feet?

(My AFOs are Arizona boot type)

Gomer
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Old 02-09-2012, 09:34 AM
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@Gomer

I have a custom AFO on the right foot/calf. It has hinges at the ankle and back stop because my r knee was hyper extending. But it does limit the movement of the right foot as all AFO's do...

I figure both my legs get the same exercise, they are side-by-side.

I read that from MS this may have to do with the nerves sending signals to the muscle and maybe a machine can be used to by-pass that.

Just want to see if anyone else had the same problems...thanks.
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Old 02-09-2012, 09:56 AM
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Sparky

You are correct in that I think my good leg is over compensating for the weaker one...although I climb a flight of stairs (up and down) about 7-10 times a day so I would think the leg has to be working on that one!

I see a local neuro tomorrow and start new round of PT next week so I want to have some information for the PT if he needs it. He works at an Ortho center rehab, but is familiar with MS.

I couldn't find a PT that specializes in MS...
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Old 02-09-2012, 09:57 AM
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My legs have the opposite problem. My calves and thighs are hard as rocks from spasticity and look like I'm a cross-country runner, though I actually get very little exercise. Now if that would just work on my abs, arms, and bottom, I'd be doing great!
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  #6  
Old 02-09-2012, 10:19 AM
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I have atrophy in one calf...it's on the leg that didn't work right. They always said I had foot drop, got the pump, and realized it was a contracture, because it eased almost completely.

So now that I can walk in a more "normal" fashion, i.e. heel toe gait, instead of slap foot, I think the atrophy has gotten some better.

Just makes sense when we use muscles in a different way than they were meant to be used, due to getting the wrong nerve impulses, that atrophy will follow. (but I like Snoopy's theory that maybe one leg is being exercised more.)

I also have atrophy on one side in my trapezius and SCM, but that has to do with a cranial nerve problem and am hoping the speech pathologist can give me some help in keeping it from getting worse.

The closer we can get to a "normal" gait, I believe the less atrophy we have. I don't know about the AFO adding to it, but I know there some AFO's that allow almost no action in the calf muscle, due to how they're designed. I'm no expert on that, so maybe the PT can help you figure that one out.
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Old 02-09-2012, 11:02 AM
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LMAO

Quote:
Originally Posted by Shashi View Post
My legs have the opposite problem. My calves and thighs are hard as rocks from spasticity and look like I'm a cross-country runner, though I actually get very little exercise. Now if that would just work on my abs, arms, and bottom, I'd be doing great!
Sashi - You sound just like me! My calves have always been very toned and the left one still is, same as thighs...the abs, arms and bottom, not so much!

I've been having calf cramps for several years now, usually on the right, but sometimes both sides...I do know the right calf is more flabby now.
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  #8  
Old 02-09-2012, 02:01 PM
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jbell2435 jbell2435 is offline
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Just found this...

Well, I just found this on healthguidance.org...

"However, some injuries also cause nerve damage which compromises by compression the nerves which supply muscles. There are times when this may be reversible but other times, if the compression is caused by a disease such as multiple sclerosis, Lou Gehrig’s disease or stroke, the damage (atrophy) may be irreversible and progressive. Sometimes nerve function can be interrupted in the brain, spinal cord or even in a peripheral nerve."
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  #9  
Old 02-10-2012, 09:12 PM
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My entire left side has atrophy...leg, arm, buttock, hand...everything. Everything on left noticeably smaller than right. It's nerve damage in my case, not from inactivity or my AFO. I've posted this before but the damn MS has cut me in two, right down the middle...it's quite amazing.
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Old 02-12-2012, 07:32 PM
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My left side has atrophy too. Sometimes I have atrophy that comes and goes in my hands and face as well. I'm not sure why it comes and goes.
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Old 02-12-2012, 09:21 PM
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meeegun meeegun is offline
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my left calf is about 1cm smaller than my right. same at my thigh. it is a noticeable difference. interestingly, my right side is the more affected side from the MS with mildly hypertonic reflexes and occasional clonus. my pain sensation is also different on the right (everything hurts more!!), yet its my left leg that is atrophying? or maybe the right is larger from the slightly increased tone? dunno. doc had no explanation either. he said sometimes it just happens that way.
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Old 02-15-2012, 06:09 AM
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I have this problem also on the side that is weaker. I did PT and the other leg became nicely toned and built up yet that one stayed kind of the same. Stronger for sure but not "buff" if you get what I am saying. It has something to do with it not getting enough juice or nerve innervation.
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