Looking for someone my age with aggressive MS

[KalikaLily]

Hi everyone!!!

My name is Heather and I am 24

I am looking for someone my age who is very very advanced in their MS
I guess I am basically looking for someone who I can talk to, swap stories with and just chat with <3
Hope to talk to you all soon!!!
Stay well
Heather

[saywhat]

Hey there. I am newly 28 and was just diagnosed. I haven't seen the neuro yet (counting down the days!) so I'm not sure how far along my disease is, but I am nearly completley disabled right now. Can barely walk from the weakness, arm numbs/hands, tremors, pains, all of it. It all came on so suddenly, and it's gotten very bad, very fast. I'm nervous to see the neuro... it's only been 3 weeks and I went from super active to almost completely disabled.

[KalikaLily]

Hi shutterbug!!

I know how you feel!!! Six months ago I was 'fine' (well... I still had fibromyalgia, but NOTHING compared to this!!)
I had my big flare in March and things went downhill pretty bad.... But this last flare that started three weeks ago broke me. My legs are useless, both my eyes are buggered and I'm losing my hands now too. It's scary!!

Do you have kids as well??

[Ringer1319]

Young mom w/ MS

Hi shutterbug!!

I know how you feel!!! Six months ago I was 'fine' (well... I still had fibromyalgia, but NOTHING compared to this!!)
I had my big flare in March and things went downhill pretty bad.... But this last flare that started three weeks ago broke me. My legs are useless, both my eyes are buggered and I'm losing my hands now too. It's scary!!

Do you have kids as well??

Hey there,

I was diagnosed about a yr ago and I was completely reliant on a wheelchair and walker. Then again in October, I had another flare that was 10 times worse and paralyzed the right side of my face.

I haven't had a flare since then... but it seems as if my symptoms are getting worse as time progresses. I saw my specialist and he said that I am RRMS... and that he doesn't know of anyone my age with a progressive form of MS.

However, my previous neuro had put in his notes that he was "significantly concerned of progressive MS"... So I'm at a crossroad. No one knows our body like we do... and I just wish I had some better answers.

I am a mother of two boys, ages two and five. I was diagnosed when I was 22... I'm now 23, soon to be 24.

I'm here to chat anytime! I love talking to people in the same "boat" as me.

Take Care!

[floatingurboat]

Hello, I'm 22 and was diagnosed a bit over a year ago. I have RRMS and have been told that my MS is also super aggressive (lucky me!) and that I have too many lesions to count. I'm relatively housebound these days, due to severe motion sickness, and always up for chatting with new people in my situation.

~Elly

[jojo18]

hi Heather,

im Melissa, 21 and apparently the expert here (lol). been diagnosed for over 7 years. had symptoms for 8.

i consider myself lucky considering most of my symptoms are relatively mild, and those that aren't can usually be controlled with meds.

i am in my 4th of 5 years of college (i decided that 2 senior seminars and a lab was too much for anyone to handle)

i am RRMS but i have progressed since my diagnoses. i have more symptoms(many more) than one i was 13. but i am better off.

why? i have learned to deal with my MS, both physically and mentally. i can live with my symptoms, but if i think about the what ifs too much, it will drive me crazy, and get me depressed.

yesterday is gone, tomorrow is a mystery.
all we have is today.

so use today wisely

[RachyRae104]

HELLO, MY NAME IS RACHEL, IM 23 DIAGNOSED AT AGE 18. THINGS ARE GOING WELL BUT ALSO WOULD ENJOY TALKING TO PEOPLE AROUND THE SAME AGE. ALSO IM HERE TO ANSWER QUESTIONS IF I HAVE THE ANSWERS! JUST LET ME KNOW!

[lieder6]

New to the site

Hello, i can so relate to all of your post's. i was diagnosed when i was 24 by having a migrane wich turned into 6 months of nothing but a new symptom after new symptom. I had about 10 to 12 symptoms pop out and still it took them 6 months and tons and tons of tests and doctors before they would say completely that i had it.

i am 29 now and had to move out of western Washington to be able to live. I was completely dissabled , no sight, body pain, legs weak i couldnt walk ect.... i was diagnosed with 11 lesions on my brain and none on my spine. I always wondered if that amount was normal. Within 1 year I had two more. When i moved to Maui Hawaii my MS and symptoms got incredably better.

I am a mom of two also who are now 4 and 7. I have not had any problems in two years and now for the last 4 months its back but not as bad but is still verry hard to live with. All the symptoms pop out when ever they feel like it.I also now have massive pain in my lower spinal area and tingling.

Going in for a new spinal MRI in a week. Any one here have any words of wisdom about the spine? Im for sure a bit freaked out. sorry know that was alot to share, i have never been on a site like this before and have to tell you it's nice to hear my story from people my age.

**Post broken into paragraphs by Moderator for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print.**

[nicole1389]

Not sure of what type of MS I have as I was just diagnosed 2 months ago and they never really told me, but it feels pretty aggressive to me. I'm 23 and had severe neck and back muscle spasms in march 2012, which progressed to symptom after symptom including loss of vision, loss of some memory, leg weakness making it hard to walk, extreme fatique putting me in the hospital, loss of fine motor skills in my hands, and constant pain.

I was diagnosed after a 10 month flare that resulted in approximately 10 lesions, doin a little better now but im thinking I have an aggressive form but Im also looking for others my age to talk to. Just a year and a half ago I was riding fourwheelers and playing soccer etc, and now I'm usually too exhausted to do much, i still try though