Let me give a brief background before my rant. My 32 yo daughter was diagnosed with MS 6 yrs ago. This is not my first experience as my Dad also had MS for 25 yrs before he passed, not related to MS. She and my Grandson live with me as do my other daughter and 2 grandDaughters.
..now getting to the point...
I won't say I 'undcerstand' what she goes thru but believe me we all live it with her. 'She' does not have MS..WE have MS. Why?, because she is such a bear to live with that we all have to walk on egg shells around her until I have reached a boiling point and tell her to just go to bed. Sound crude? rude?..Maybe!
She refuses to get involved in ANYthing, community, church, volunteer or find a support group. Lazy?..You don't want to hear that word, but let me tell you, if her behind gets off the couch and off the pc more than a few times a day, I will be surprised. Let a friend call to go somewhere and she finds all kinds of energy!
There is no reasoning with her. Everyone is against her, no matter what goes on it is her fault. Almost paranoid.
Now I know stress is not good for MS but at what point does demand that the world revolve around them stop??
As long as She is in a good mood the home is 'normal' and a Real family. We laugh, play, talk and enjoy each other.
I read many posts about ppl getting invoved in activities, trying different foods even. I have spent hrs and hrs researching MS websites for info to help or disduss with her. The last time she said she was 'tried of hearing all my quack ideas and bulls&%#'. Waiting for 'good' days to come back really takes it's toll on the entire household!
Sorry so long. I need some input and feedback on how to help her thru these episodes and how to protect the hurt feeling she inflicts on the rest of us all during these times.
thanks for letting me scream here
..now getting to the point...
I won't say I 'undcerstand' what she goes thru but believe me we all live it with her. 'She' does not have MS..WE have MS. Why?, because she is such a bear to live with that we all have to walk on egg shells around her until I have reached a boiling point and tell her to just go to bed. Sound crude? rude?..Maybe!
She refuses to get involved in ANYthing, community, church, volunteer or find a support group. Lazy?..You don't want to hear that word, but let me tell you, if her behind gets off the couch and off the pc more than a few times a day, I will be surprised. Let a friend call to go somewhere and she finds all kinds of energy!
There is no reasoning with her. Everyone is against her, no matter what goes on it is her fault. Almost paranoid.
Now I know stress is not good for MS but at what point does demand that the world revolve around them stop??
As long as She is in a good mood the home is 'normal' and a Real family. We laugh, play, talk and enjoy each other.
I read many posts about ppl getting invoved in activities, trying different foods even. I have spent hrs and hrs researching MS websites for info to help or disduss with her. The last time she said she was 'tried of hearing all my quack ideas and bulls&%#'. Waiting for 'good' days to come back really takes it's toll on the entire household!
Sorry so long. I need some input and feedback on how to help her thru these episodes and how to protect the hurt feeling she inflicts on the rest of us all during these times.
thanks for letting me scream here
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