It appears that your MSWorld session has not been initiated or has expired. To renew your session, please click here, then click 'Logout' on the right hand side and log back in again.

Go Back   MSWorld Forums > MSWorld Message Boards > General Questions and Answers
Register FAQ Calendar Guidelines Mark Forums Read Login

General Questions and Answers For learning, sharing your experience, and exchanging information about Multiple Sclerosis. Please discuss medications in the Medications forum, and natural supplements in Tara's forum.

Reply
 
Thread Tools Display Modes
  #1  
Old 03-11-2011, 04:26 PM
zukergirl's Avatar
zukergirl zukergirl is offline
Registered Member
 

Join Date: Oct 2007
Location: Pennsylvania
Posts: 9
MS Hug ... How long does it last?

I'm having a flare up. From what I've read on here and from my neurologist, it's nicknamed an "MS Hug". So I've had this symptom for 11 days now. I'm on my 4th day of oral steroids. How long will this last? I know it's different for everyone. But I only have 2 more days of steroids and it hasn't let up. I'm getting really discouraged.
__________________
DX'd 10-7-05

"We may be ill, but we are not weak!" - Montel Williams
Reply With Quote
  #2  
Old 03-19-2011, 04:06 AM
sneakypuss sneakypuss is offline
Registered Member
 

Join Date: Jun 2009
Location: Sydney Australia
Posts: 34
Hi Zuckergirl

The MS hug was one of the presenting symptoms (along with others) at the time of my dx.

Mine started in May 2009 (was formally dx'd July 2009) and lasted about 6 months.

It is the most aggravating feeling. Just remember, it is different for everybody. I hope you get some relief soon.

Sneaky P
__________________
Diagnosed July 1st 2009 ~ RRMS

They're not brain lesions...they're bight ideas
Reply With Quote
  #3  
Old 03-19-2011, 10:45 AM
newme newme is offline
Registered Member
 

Join Date: Dec 2006
Location: Pennsylvania
Posts: 298
For me, it lasted over a year. But the worst of it passed in about 6 weeks.

My doc tested for all kinds of digestive things but never thought of MS. After I (finally) went to a neurologist (on my own) I was told it was MS but no steroids were recommended.
Reply With Quote
  #4  
Old 03-19-2011, 05:01 PM
Kolo Kolo is offline
Registered Member
 

Join Date: Mar 2011
Posts: 6
MS hug

I just encountered MS hug with my latest flare up. I am going on 4 weeks now. While it has significantly decreased since I finished the oral steroids it still comes and goes enough to be really a pain. I am hoping it will continue to lessen even more as more time passes.

I have noticed that when my anxiety spikes i get the "hug" right away and more intense. So for me the key is staying well rested and keeping my anxiety under control. I hope you get some relief soon.
Reply With Quote
  #5  
Old 03-19-2011, 08:59 PM
lessaleew lessaleew is offline
Registered Member
 

Join Date: Dec 2008
Location: Milton,ontario,Canada
Posts: 10
Ms Hug

My hug has lasted years. I cannot stand to wear a bra.
It sure makes it diffacult to dress up and feel pretty I wear vests and scarves alot.
__________________
Leslee
Reply With Quote
  #6  
Old 03-19-2011, 09:11 PM
bluenose95 bluenose95 is offline
Registered Member
 

Join Date: Mar 2010
Posts: 88
Does the "hug" always have to wrap around the chest area or can it be localized in an area such as on the back. Is it worse lying down or does that not even affect it?
Reply With Quote
  #7  
Old 03-19-2011, 09:45 PM
MrsChip MrsChip is online now
Registered Member
 

Join Date: Aug 2009
Location: Cheshire
Posts: 143
MINE LASTED 3 WEEKS

hI. MS Hug was one of my presenting symptoms at diagnosis along with loss of joint position sensation at the left shoulder. It lasted 3 or 4 weeks without any treatment so i'l bet it will buzz off very shortly xxxxx
Love and hugs as ive had ms for 20 years and still doing well but have to say that my one experience of the MS Hug is one of the most horrible SX ive experienced. Thank goddness that it tends to be farely short lived.
Reply With Quote
  #8  
Old 03-19-2011, 10:01 PM
owlnona owlnona is online now
Registered Member
 

Join Date: Jan 2010
Posts: 438
Hi! Sorry you're having a flair. My MSHUG is always just above my waist under my ribs. I find it comes & goes.
My flairs always impare my walking & use of legs,but I've been having some optic nuritsis (sp?) That makes me crazy as I read a lot!
I was DX in May 2000w/ RRMS. Keep us posted God Bless Nona Judy
Reply With Quote
  #9  
Old 03-20-2011, 02:23 PM
gram21's Avatar
gram21 gram21 is offline
Registered Member
 

Join Date: Jul 2009
Location: Maryland
Posts: 15
I was DX with MS in 2000 and have had the MS hug on and off since then. Have had a lot more recently but don't know why. It is always on my left side above the waist just under the rib cage and when it hits it just about drops me to my knees. Sometimes just laughing, turning, breathing, or just about anything will set it off. Feels like a huge muscle spasm squeezing so tightly. Hope you're feeling better soon.
Reply With Quote
  #10  
Old 03-20-2011, 02:26 PM
salamandertom's Avatar
salamandertom salamandertom is offline
Registered Member
 

Join Date: Dec 2010
Location: New Hampshire
Posts: 750
I am sorry you are in such pain. I just recently starting having them, and the worst of it only happened for a day - I cannot imagine it lasting much longer than that. HUGS and I hope it is getting better for you. I find it to be a terribly annoying and painful symptom.
__________________
Sasha - dx January 2011; tysarbi, zanaflex, gabapentin, and baclofen
~Life is not about waiting for the storm to pass, it is about learning to dance in the rain.~
Reply With Quote
  #11  
Old 03-21-2011, 02:07 AM
sneakypuss sneakypuss is offline
Registered Member
 

Join Date: Jun 2009
Location: Sydney Australia
Posts: 34
I still have a mild 'half' of a MS hug. It's on my right side only, and it goes from my underarm to the middle of my chest. It's worse when I lay down, and my neuro thinks its due to a lesion on my T1
__________________
Diagnosed July 1st 2009 ~ RRMS

They're not brain lesions...they're bight ideas
Reply With Quote
  #12  
Old 03-21-2011, 08:13 AM
marti's Avatar
marti marti is online now
Registered Member
 

Join Date: Nov 2002
Location: Missouri Ozarks
Posts: 820
SEEMS LIKE A LIFETIME!
__________________
Marti




The only cure for insomnia is to get more sleep.
Reply With Quote
  #13  
Old 03-21-2011, 10:28 AM
watefalls2's Avatar
watefalls2 watefalls2 is offline
Registered Member
 

Join Date: Sep 2007
Location: Blackwell Oklahoma
Posts: 26
MS hugs are no fun thats for sure. Like everyone has said they can last awhile. But my Dr. did say that even though we need the steriods, they can add to the death grip we call MS hug hang in there and I'm sorry you have to deal with it.
__________________
Life is like a coin u can spend it any way u want, but u can only spend it once!
Reply With Quote
  #14  
Old 03-21-2011, 11:00 AM
Toomnyhats's Avatar
Toomnyhats Toomnyhats is offline
Registered Member
 

Join Date: Jan 2009
Location: Houston TX
Posts: 748
In the past they have only lasted a few weeks, but I've had one for several mos now. This one is mildly uncomfortable (like my bra is too tight).

I have had some that made it very uncomfortable to take deep breaths, but thankfully none that I would classify as "painful".
__________________
Dx 10/2008
Beta Babe 12/2008-07/2013
Tecfidera 07/2013-present
Reply With Quote
  #15  
Old 03-21-2011, 12:17 PM
marti's Avatar
marti marti is online now
Registered Member
 

Join Date: Nov 2002
Location: Missouri Ozarks
Posts: 820
Quote:
Originally Posted by Toomnyhats View Post
In the past they have only lasted a few weeks, but I've had one for several mos now. This one is mildly uncomfortable (like my bra is too tight).

I have had some that made it very uncomfortable to take deep breaths, but thankfully none that I would classify as "painful".
Toomy.. thanks for completing my thought. I have an awful time taking in a deep breath and this goes on for months at a time. One of my doctors calls it air hunger.
__________________
Marti




The only cure for insomnia is to get more sleep.
Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off

Forum Jump


All times are GMT -6. The time now is 09:01 PM.