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Old 01-29-2011, 12:28 AM
TalknMS TalknMS is offline
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Heavy leg feeling

My legs work just fine, but does anyone get like a heavy leg feeling or kind of an achy feeling. It is like I can move them normally, but if I am laying down they just seem like less of a regular part of my body that just moves without thinking about it.
Old 01-29-2011, 01:27 AM
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Maple25 Maple25 is offline
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I saw your post on the weakness thread. I have the same feeling, top to toe, including eyes, shoulders, arms, legs. When I walk for a long time my legs start to shake. Last week I went out for a little walk in the forest, that turned out longer than expected, and I could barely make it back home. The only thing that would keep me walking home, would be the stray dogs out there, that I don't want to meet up with I used to run a lot and I was so proud of my self when two summers ago I finally reached my goal of running 10 kms. Then it all started to come down. I can no longer run, or if I run I get the rubbery legs and I can last about 2 mins before I am done.
I wish I could just start being very active and get the thrill of a good exercise.
I asked on other threads if the fatigue pills would combat this sort of tiredness. I will go next week and get my iron and vitamin B levels checked out, to just make sure they're not the culprits.
RRMS Diagnosed December 2009,
on Copaxone December 2009-October 2011 -
Starting interferons hopefully soon.
Old 01-30-2011, 12:00 AM
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CasinoKathy CasinoKathy is offline
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Hi TalknMS, welcome to MSWorld!

I kinda can relate to what your feeling with the legs. When mine start to feel heavy (which doesn't happen too often, now that I'm on baclofen) I know that the spasticity is starting in.

During the summer when it's really humid I do still get that heavy feeling in them though. If I can get into the air conditioned house and put ice on them, the heaviness goes away in a very short time.
Old 01-30-2011, 09:08 AM
whatthehwegoingtodowiththiss whatthehwegoingtodowiththiss is offline
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How long have you had MS? When did you start these symptoms?

I have been dealing with heavy leg/achey thighs since May 2008 (when I had IVSM for three days and 100mg taper 4x in a year). I am still on sterioids. Three drs including rheumy and neuro say prednisone myopothy but I am convinced that this is MS because I have some nonspecific lesion or whateverin my whitematter.

Iwent an MS clinic in RI and he said guidlines dont diagnose on an MRI?
I am 31f and have anxietythrough the roof on a daily basis and have a rare bleeding problem.
Old 01-30-2011, 09:26 AM
Tomjadg Tomjadg is online now
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I am very much like maple.

I used to walk 10 miles a week on my treadmill, but I can't even get on it now.
Legs are very "wobbly", and the left much worse than the right. The left was the first to get slight symptoms about 3 years ago.
Both legs have that heavy feeling, left worse, but no aches.

I have had spasms in the left leg, but they have got stronger in the past few days. I am going to try Baclofen once I find out it wont interfere with the Ty I am starting.

The heavy feeling, and the numbness in the leg and feet are a real balance problem.

This does suck, doesn't it?
Old 01-31-2011, 04:50 AM

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Heavy legs before/after huge ON attack

During the time of 2001 when I had my big ON attack = it was accompanied by Heavy Leg Syndrome! Yes, I can sympathize very much with diagnosed MS people who have this symptom!

One of the worst things was I had a shift car and could not lift my leg to do the shift or gas or brake sometimes....especially when changing from one to the other the way you have o do with a gear shift. So I tied a rope to each leg and lifted it with that. Sorry everybody that doesn't sound safe .... but at the time I had no choice but to also live in my van. Eventually I did get stopped and huge ticket over that justice does prevail I guess.

As I have said in previous postings...I rambled down the street dragging the soles of my shoes off rapidly due to the fact that i couldn't lift my legs off ground. This was different than foot drop. To get up from a sitting chair; was quite a joke. I had to slowly move my legs inch by inch until got in position. People were looking at me like "why are you playing with your legs?"

Since I am overweight just about everybody attributed my problems to that. One person even said my ON was caused by fat in my face blocking the nerves.

I am quite a writer. I would like to write something where I accumulate all of these most inner circle MS symptoms or neurological symptoms and sort of show the world in a book or something. Show the people of the world what it is really like to have MS and so they won't be so cynical.
Old 01-31-2011, 06:01 AM
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salamandertom salamandertom is offline
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Mine get like that - especially toward the end of the day or if I have been walking a lot that day. They feel disconnected from me - like stumps of wood that my body moves and are heavy. My knees still move via me - but feel like they could stop working at any moment too. Very strange feeling indeed.
Old 02-06-2011, 01:14 PM
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Patti3250 Patti3250 is offline
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Heavy Leg...

My weakest leg is my right...they call it foot drop so I'll go with that. I must say that I too have had the heavy leg problem. Not as much lately. Not sure what changed, I tried baclofen but didnt see a difference (although I think that is more for spacsify (sp?) so I stopped. Also tried amprya, again didnt notice a difference, so I stopped that as well. Now, just doing the avonex injections once a week which I have been taking since diagnosis (1999). my legs do not feel as tired or heavy lately but the foot drop is not my friend.
Old 02-06-2011, 05:31 PM
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WACVet WACVet is offline
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I tell everyone my legs feel like I have lead weights on them. I realize it's the spasticity, and I take baclofen, but it doesn't help as much as I would like. Just walking a few steps is like walking yards for me, and it tires me out so fast. A trip to the store is now a dreaded task, because I know I will be down and out for a minimum of a day!
Old 02-10-2011, 04:26 PM
colle colle is offline
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This is by far the worst MS symptom I have ever experienced. It has been 1 yr for me now with heavy legs. My Dr also said it is due to the spasticity, which I know I have really bad. When I get cold, even the slightest bit, the spasticity kicks into high gear and I stiffen up. The heavy (lead feeling) legs are with me 24-7 though. I hate it. I can't run at all....I'm on my toes if I try and my knees just will not bend. With that said, I think it's all extensor spasticity for me. My plantarflexors combined with my quads, and probably hip extensors too. I feel like the tin man who weighs about 500 lbs, and in reality I only weigh 113 at 5'7. Did I mention already that I hate this? I have tried Baclofen for several months and it did nothing. I will be trying botox injections next month. I'm hoping it will help because I just want to be able to move freely again.
Old 02-10-2011, 08:55 PM
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girlgriffin711 girlgriffin711 is offline
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Originally Posted by salamandertom View Post
They feel disconnected from me - Very strange feeling indeed.
Great way to explain it...I have this as well and have a hard time expressing how it feels to others who don't know.

Isn’t it a bit unnerving that doctors call what they do “practice”?
Old 02-10-2011, 09:21 PM
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WACVet WACVet is offline
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I've been sick with the flu all week, and I can tell you that the heavy leg gets MUCH worse with the flu! With the spasticity, PLUS the joint aches...ugh. I thought the fatigue was bad before, now, the thought of walking a couple feet to the bathroom is exhausting.
Old 02-10-2011, 10:22 PM
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Deer In Headlights Deer In Headlights is offline
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I feel like I have a weighted pants on, or like when you go to the dentist and get x-rays done, that led jacket. You can still move your feet but it takes effort.
Old 02-10-2011, 10:55 PM
MS TOO MS TOO is online now
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I've got the same symptom especially after doing anything physical like working in the yard. I'm also starting to have really stiff legs with a Frankenstein walk for the first 1-2 hours of the day. I'll be starting on amantadine soon as suggested by my Neuro, I hope it helps.
Old 02-11-2011, 04:17 PM
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Patti3250 Patti3250 is offline
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Heavy Leg -

MSTOO: You are so right, frankenstein legs. Never thought of that before, but I used to get that right as I got out of bed but it went away. I am noticing it more and more these days. It doesnt last though, by the time I get to the bathroom and take a shower, it passes.
Diagnosed 2/11/99
Avonex 3/2/99
Tried Tecfidera for 3 weeks. Couldn't handle side affects. Back on Avonex, for now.

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